Reasons to Smile: Hi lovely Lupies. I thought you... - LUPUS UK

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Reasons to Smile

CecilyParsley profile image
48 Replies

Hi lovely Lupies. I thought you might like to see my latest pottery piece. While it is nowhere near as gorgeous as my beautiful boy Finlay, I think it captures the essence of him.

I needed a reason to smile today and bringing this piece home has provided it.

I really hope that everyone is as well as you can be ❤️ xxx

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CecilyParsley profile image
CecilyParsley
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48 Replies
Spanielmadlady profile image
Spanielmadlady

Absolutely love it 😀. Well done xx

CecilyParsley profile image
CecilyParsley in reply toSpanielmadlady

Thank you so much xxx

MEGS53 profile image
MEGS53

WOW 🤩

How wonderful, well done to you xxx

CecilyParsley profile image
CecilyParsley in reply toMEGS53

Thank you Meg xxx

MEGS53 profile image
MEGS53 in reply toCecilyParsley

You are very welcome.

I’ve read with sadness on other sites about your ongoing health problems. Stay strong 🤗🤗🤗

CecilyParsley profile image
CecilyParsley in reply toMEGS53

I am trying lovely xxx

MEGS53 profile image
MEGS53 in reply toCecilyParsley

😘😘😘😘😘😘

Bowenlady profile image
Bowenlady

lovely! Saw your post on another forum about diagnosis. How are you feeling today? My heart goes out to you. Hope your legs are feeling better. Lots of hugs. ❤️

CecilyParsley profile image
CecilyParsley in reply toBowenlady

Thank you so much. No my legs are awful, very painful and stiff. As no one is going to help me I have arranged for my podiatrist to do a Doppler of my ankle to see if there is restricted blood flow. If there is it us off to A&E with my wheelchair, a packed lunch, wet wipes and a good book as a lady we know sat for 24 hours in a chair waiting and she had sepsis. If not I am going to see a Chiropractor. I just cannot sit and wait for any if my doctors to care sadly 😕. Thanks for asking cxc

Bowenlady profile image
Bowenlady in reply toCecilyParsley

I hope you get SOMEONE to actually care what is happening to you. Which part of Wales do you live in? X

CecilyParsley profile image
CecilyParsley in reply toBowenlady

South Wales, Tredegar. Life with the new super duper surgery is pretty grim xxx

Bowenlady profile image
Bowenlady in reply toCecilyParsley

I’m in Port Talbot, South Wales. Dych chi’n siarad Cymraeg?

CecilyParsley profile image
CecilyParsley in reply toBowenlady

No I wish I did. I never learned it at school. My Ban grew up in Cilfynydd and spoke Welsh but my Mam never spoke it. I worked in Port Talbot and loved it, I actually cried when I left such a lovely group of people xxx

svfarmer profile image
svfarmer

it’s amazing Julia, your so clever x

CecilyParsley profile image
CecilyParsley in reply tosvfarmer

Thank you so much. I really am useless but I so enjoyed making this. Skye is next xxx

gunnara profile image
gunnara in reply toCecilyParsley

Hi that is really very good and art is something I know a bit about, and lupus also. I am fortunate in living in a part of Lincolnshire where the NHS is in the great sceme of things very good, mostly due to an excellent medical centre and doctors.

CecilyParsley profile image
CecilyParsley in reply togunnara

Thank you so much Gunnara. How wonderful that you have excellent care in Lincolnshire, here in Wales it is amazing in parts but so inadequate in others xx

Chris21 profile image
Chris21

Thats amazing, I saw Finlay immediately, love the way youve captured everything from the hills to his flappy ears 😄 love it! hope it has pride of place on your mantle/shelf. ❤️x

CecilyParsley profile image
CecilyParsley in reply toChris21

Oh that is so kind Chris thank you so much. My hubby is so clumsy he stashed the little one I did of Finlay, a dish and a vase so currently we are trying to figure out where is safe to put him xx

CavendishCool profile image
CavendishCool

I am utterly in love with this piece and I would definitely buy it if it wasn't for the fact that it is the most well captured and priceless tribute to your gorgeous Finlay. I love the angle of his nose as if he were tasting the sniff of the adventure - my Spaniels have always done that as well as thinking they own you and everything around them, which they do, of course. He looks just happy to be where he should be - the top dog on top of everything, living his best life! Now I have a tear in my eye so I feel like Keith on the Great Pottery Throw Down which I think you should consider although I daresay the Loopy will not let you alone long enough, far better to enjoy pottery your way. Thank you for the cheer up - had a horrible niggly week, where many of my friends would say - pull yourself together, it could be worse; to which I grimace (that passes for a smile these days) to let them know of course they're right, I am being pathetic. Pottery Finlay has just enabled a proper smile, pity there's no one here to see it. What does your "muse" think of it? Have a great day Fellow Loopies ftom the strange land of Lupus et al 😀 😊 🙏

CecilyParsley profile image
CecilyParsley in reply toCavendishCool

Bless you, I understand that grimace well, although mine is more of a scowl lately. I really wish we could pull ourselves together . Wouldn’t that be amazing? Pain gets you down. This past month I have been a head spinning monster, screaming at my hubby then howling in frustration and shame because I have never been a nasty person. It shouldn’t be just down to us to fix us, we need help from our Doctors and lately that help for he has been unavailable. Making my Finlay has been a distraction. My pottery group is so much fun that is little to do with pottery. We are 60 something women with collective socialist values who love our fur family and enjoy a good belly laugh.

Finlay was disinterested in my little homage after all it is not edible 😂.

Thank you for your lovely comments, you have made my day. I sincerely hope you start to feel better xxx

CavendishCool profile image
CavendishCool in reply toCecilyParsley

You missed a trick there, maybe Pottery Finlay Mark II could have a removable lid for treat storage. Plenty of interest then I expect 😊😋. Your pottery group sounds amazing. Do you have a teacher or are you left to your own devices? Now pottery throwdown has finished, I find myself avidly shouting at the Sewing Bee. Give that Finlay a hug from Suffolk and there is of course one for you 🙏

CecilyParsley profile image
CecilyParsley in reply toCavendishCool

Omg lids are so hard to do. They shrink when fired so hatching is an issue. I cannot use the wheel because my wheelchair isn’t low enough so everything I do is hand built with numb fingers and therefore I am the wonky potter. The group is so much fun. Our language is choice, our humour irreverent and we just laugh. It is a real tonic. We have become friends, something you can never have too many of. We have a potter but honestly she is disinterested and sits doing her own stuff while we work. We do get frustrated at times as we seem to only learn by trial and error, but she does give us tips and she is very much part of our group. We go out for lunch now and again too.

I cannot sew but have started watching The Sewing Bee as one of the ladies in the pottery group is so multi talented. When my Brodie and Dylan passed away she made me Littke felted models of them for the top of their caskets and for Christmas she hade me felted Finlay and Skye inside Littke baubles for my tree. Amazing really.

Big Cwtches back to you and slobbers from the boys xxx

CavendishCool profile image
CavendishCool in reply toCecilyParsley

Well done on your hand building skills, but that's my type of pottery - you can see every mark which is what is so apparent with Pot(ty)Finlay. Sounds like my type of group. I do miss having what me and my husband call a "daft laugh", with like minded people especially a group of ladees (am I allowed to be that specific - I get confused with what is "correct") as the world has become so serious lately. I suppose rightly so? I will show more respect for lids and the construction thereof from now on. 🙏 How lovely to have needle felted memories of your adored and much missed woofers. I have dabbled with needle felting, but they always look like "blobs!"Cwtches very gratefully received. 😊

CecilyParsley profile image
CecilyParsley in reply toCavendishCool

❤️ xxx

Graystar profile image
Graystar

I love it! 🥰

CecilyParsley profile image
CecilyParsley in reply toGraystar

Thank you so much xx

JCZW profile image
JCZW

Morning CecilyParsley

You really have come on with your pottery skills. It looks gorgeous.

I'm having a really rough time at the moment, so it was good to have something that puts a smile on my face. Thank you. Xx

lupime profile image
lupime in reply toJCZW

Sorry to here that JCZW. x

CecilyParsley profile image
CecilyParsley in reply toJCZW

I am so very sorry. Seems like a lot of us are suffering at the moment. I hope things improve for you. Big Cwtches. I am pleased it gave you a smile xxx

rafael profile image
rafael

it looks fab. Well done!

CecilyParsley profile image
CecilyParsley in reply torafael

Thank you Rafael xx

lupime profile image
lupime

That is such a wonderful piece. Full of life and soul and movement in the ears with the feel of the wind ruffling through them. You have a real gift - NO STOP IT - Don't do yourself down - you have. Your group sounds great. I belong to my local art group and I love going there - everybody is so friendly and interested in each others endeavours with lots of encouragement and inspiration along the way. It really keeps me going. I hope for better health for you and send you the warmest of wishes. xxx

CecilyParsley profile image
CecilyParsley in reply tolupime

That is just so kind of you. With my numb fingers I look at what the others do and despair sometimes but I like this piece and I am proud of it.

Thank you too for the well wishes. I know there are no miracles but just someone wanting to help would be so good. I am sick with disappointment at my Rheumatologist who I have always bought was so caring xxx

Barbara17 profile image
Barbara17

He’s sitting on top of the world! It’s lovely - you have so much movement in it. Hope you get some help soon.

CecilyParsley profile image
CecilyParsley in reply toBarbara17

Thank you Barbara that is so kind xxx

stiff19 profile image
stiff19

Ah Cecily its adorable 🥰 well done you 👍 thinking of you in your health struggles and sending 🤗🤗🤗🤗xx

CecilyParsley profile image
CecilyParsley in reply tostiff19

Thank you so much lovely. You know all about struggled. Big Cwtches back at you xxx

honeybug profile image
honeybug

how cute CP. luv ya 🤗♥️🥰🙏🕊

EJ 😊

CecilyParsley profile image
CecilyParsley in reply tohoneybug

Thank you Honeybug. Xxx

honeybug profile image
honeybug in reply toCecilyParsley

most welcome sweetie xxx

CecilyParsley profile image
CecilyParsley in reply tohoneybug

😘❤️ xxx

Zezes-nan profile image
Zezes-nan

Love it well done

CecilyParsley profile image
CecilyParsley in reply toZezes-nan

Thank you xx

gunnara profile image
gunnara

I know it's very poor in Pembrokeshire where we once lived. I have a niece who lives in Deri in South Wales, and she seems to cope with it. We are fortunate we have a local surgery with many doctors and health professionals, it should be like it everwhere. I hope things improve a little for you. X

CecilyParsley profile image
CecilyParsley in reply togunnara

Thank you so much xx

StriatedCaracara profile image
StriatedCaracara

Really beautiful picture. Thanks for sharing with us. Your pottery piece of Findlay is totally brilliant.

At my last NHS hospital appointment I told the doctor that it was a waste of her time me being there. That there is always some reason why they can't help me. That NHS pathways are not capturing issues. That criteria are insufficient. That what they do may improve their stats and manage caseload but does not give value to patients like me. Instead it causes flares and some of their tests made things worse because exception criteria not extensive enough . That management of the system was so poor. That in my life, in jobs, where things were obviously wrong I would speak up about it

That I had to go private for any rheumatology care, a diagnosis and treatment.

They seemed to agree and I heard staff talking about the situation as I left. Thankfully another appointment a specialist had made with them got cancelled. Eye hospital here probably scored on referring on, as so much referring on hapened ( wish GP referrals were as easy). Would be great if clinical pathways actually met and embraced, so conditions were helped but they don't.

Had several referrals from them, none of which then diagnosed anything. They have not confirmed what the lesion is in my eye, found three years ago. Scans are too frequent and afterwards my eyes are worse 3 or 4 weeks later, then they improve. Sure it all contributes to cataracts too. Not happy to scan yearly, try to make more frequent despite no change so far.

Nobody wants to discuss anything. Only get to speak to appointment staff.

Specialists working remotely, just looking at scans. Work sometimes outsourced to companies with lower standards and insufficiently tested computer forms and messaging that sends prompts for things you have done already, who are making loads from NHS.

CecilyParsley profile image
CecilyParsley

Thank you so much for your kind words about my Finlay.

I couldn’t agree more about pathways of care being exactly the opposite for people like us. It is downright punitive. Yesterday broke me. Five months of 1- 2 hours sleep, constant pain took its toll when a pain consultant told me that she could only deal with the referred pain in my pelvis and that I would need individual referrals for the leg pain.the back pain, the muscular skeletal pain, the genital sores etc. The politics of the madhouse and totally devoid of any care.

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