Diagnosis yay

Finally daughter has been given a diagnosis of Lupus the rheumotologist said there is now enough evidence to support this diagnosis. So although a long road ahead we know what we are dealing with!!!! I think thank you for all the support and advice that's been given. Thinking of joining the lupus UK site and/or local Kent support group anyone know How?

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  • ๐Ÿ™‹Well done sandy! ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘ Thanks vvvv much for letting us know...am glad you're here....hope you'll keep us posted....wishing you and your daughter every best wish

    ๐Ÿ€๐Ÿ˜˜๐Ÿ€๐Ÿ˜˜ coco

    If you click on the 'Join Now' box above, you can become a member of Lupus UK. the Lupus UK website gives details of local groups...here is a link to that section:

    lupusuk.org.uk/lupus-group-...

  • Thank you hun this has been a god send and will continue to be over the coming years thank you for links etc regarding joining group wtx

  • Hi Sandie1964,

    I'm really glad that you have some answers and now know what your daughter is dealing with. As Barnclown said, you can become a member of LUPUS UK by clicking the link above or by going to lupusuk.org.uk/shop/#!/Memb...

    You can also find information about the Kent Lupus Group and contact them directly at kentlupusgroup.org/.

    How old is your daughter? If she is 16-26 then she may also be interested in our young people's group which meets in London. You can find more details of this at lupusuk.org.uk/lupus-in-you...

  • Hi Paul

    My daughter is 21 (last week) however she does suffer with anxiety and she is not sure how she would cope. I have to attend all her appointments with her as she struggles to go to them otherwise I'm not sure she would go.

  • Hi Sandie1964,

    That's understandable. In the past we have had young people attend the group meeting with a parent or family member for the first time to help give them more confidence.

  • Anxiety is one of the awful symptoms! Hopefully some of her medications will help with that.

  • Hi sandie

    So pleased your daughter has a lupus diagnosis. Do hope her treatment helps and she improves. You must be very relieved as you say you know what your dealing with. Keep posting. X

  • Good luck to your daughter. Having a diagnosis...although horrid...at least is some way to hoping that she has the right treatment. x

  • Hello and welcome. I totally understand your reaction to your daughter's diagnosis. I was relieved when I got mine. It's a feeling of finally knowing what you are dealing with. Knowing that there are doctors and medication that can help. That it's not in your head and you will be taken seriously. It's great you've found us here and joining a local support group is a brilliant idea too. I don't have a local group and rely on this site. Lupus can feel very lonely otherwise. I wish you both well. I hope things go smoothly for your daughter now. Best wishes.

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