Hello so I have been to my first rheumatologist appointment today. I would say it went fairly ok, although there are still some unanswered questions..
My rheumatologist seemed nice although I got the sense that he as unsure on some things which has left me feeling with doubt. Anyway to cut the story short I have been diagnosed with 'fibromyalgia' with a tendency to lupus'. I took with me all my photos and explained all my symptoms. He looked at all my results which were in the 'normal' range, which is a relief in itself however doesn't help towards diagnosis. He showed me a diagram of normal at one range and lupus at the other and out me towards the lupus side but not quite there. He said that my body is fighting against itself causing these symptoms however thankfully last affected my internal organs. He then explained how other rheumatologist may well have given me the diagnosis of lupus and put me on medication however he felt there's no need for medication if there was no severe problems with my organs (he seemed very anti-drugs). I was then given the diagnosis of FM which he told me can be a diagnosis confused for lupus I asked him what my rash on my face was and he said he would say definetly resembles lupus. So to me it seems that because my blood work has come back within range that I have now been given this diagnosis however I have symptoms that indicate lupus!!???!!! So to end the appointment I have been given hydroxychloroquine to take for 6 weeks to see if it helps symptoms then to go back again in 6 months for more blood works!! I'm now left so confused?! So if i was to have blood eat done again and my ANA came back positive I'm sure I would then be rediagnosed with lupus! or if I was to develop in the 6 months problems with organs, again rediagnosed. It alp just seems like a long process with so many unanswered questions.? Had anyone else experienced this before there diagnosis with lupus? I don't know how to feel... thankyou