Finally after more than 5 years I have received my lupus diagnosis. I know to be labelled may be upsetting for some but for me it has been a complete relief! Finally I feel I am believed, finally I feel like I'm being listened to and finally I can move forward.
Thank you all for your support 🙏 ❤
Sounds a odd thing to say but I’m really happy for you xx
I’m so glad you’ve now got a diagnosis like you say you can now move forward x
Its a relief to most people when they finally get a diagnosis.
Take time out for yourself to let the news sink in. Trust me, it's important to look after your wellbeing over the next few days.
I know exactly how you feel l was diagnosed over 15 years ago lt took about 3 years to get a diagnosis l was even given antidepressants at one stage even though l wasn’t depressed just fed up feeling ill and tests coming back normal. It was only when l went to a private London hospital that l got my diagnosis and as they say the rest is history. I hope now you can get the correct medication x
They were treating me for lupus but wouldn't label me with it... i saw a different rheumatologist yesterday who couldn't believe it and diagnosed me there and then with lupus
Hopefully now you have your diagnoses you will be taken seriously . My lupus has been in remission for years l take 200mg hydroxy daily plus 2mg a week prednisolone which is a maintenance dose, unfortunately other autoimmune illnesses have cropped up which causes me a few problems but like must of us l battle on and enjoy the good days which now have overtaken the bad. Take care and stay safe x
Many thanks you too x
I think I know what you mean, no one wants lupus of course or any negative diagnosis, but the explanation a diagnosis can bring and answers to why and hopefully helping hand of treatment must be such a relief after a long search and battle as it is to get some answers. You must be going through some very mixed emotions right now, and shows how inflicting itself the unknown is when searching for answers and like you say now you can move forward with a heavy burden of uncertainty removed which will hopefully give you the strength to now deal with what you now know. Sorry for your diagnosis but happy for you that the uncertainty weight which weighs so heavily is now gone. Fighting blind in the dark is hard at least with some light your battle will be easier. You’ve had sound advice, take time ,take care and best wishes x
So pleased for you to finally get an answer, you can now move forward and get the correct treatment you need. I think for your mental well being, this diagnosis has lifted what doubts you must of had in the past - ‘is it all in my mind’. I totally understand what you’ve gone through - it took over 15 years for me to be diagnosed. After unread and missed Dr ‘s reports - being put on Prozac for depression that I didn’t even have - given Septrin for migraines! - the list goes on and on. I gave up - thinking I was imagining it! However - that’s in the past, and the important thing is that you take care of yourself and educate people around you - to be able to look after you.
My daughter is going through exactly the same now - 4 years and still no diagnosis. Lockdown now abruptly ended appointments. However, I’m right behind her with oodles of knowledge and support. She’ll get there in the end. Best wishes to you and look after yourself. X
such a shame we have to suffer like we do before being diagnosed. Hope your daughter soon gets some answers x
Many thanks - I hope you also get all the support you need. Keep smiling x
I understand completely having a diagnosis to explain all the things that you suffer is a relief. Although a dreadful diagnosis I know that I read about Lupus and said this is me, this is how I feel, how I am. I am so sorry that you have Lupus but delighted that now you finally are taken seriously and hopefully treated xx
I teared up with happiness when I was told. Sounds daft but I had years of being told it was 'my age', depression and then CFS. Not being believed and treated like an inconvenience.
To be sent to a consultant who not only took me seriously but then give me a diagnosis was like winning the lottery.
It shouldn't be such a battle when you are already struggling with just getting through the day.
Not at all. We have all been there and felt the relief when the diagnosis came. For me it was because I felt like I wasn’t going crazy and wasn’t imagining the symptoms. The doc’s kept telling me all was well so I tried to believe it until the symptoms were so bad it couldn’t be denied. You are lucky it only took 5 years for you. My symptoms started in the 80s and I wasn’t diagnosed until 2014. They were mild at first, and got worse as the years went on. I had one bad spell in 1982 where I became severely ill with high fever and very low white count 0.9. Now that I’m on meds my symptoms are controlled for the most part. Hydroxychloroquine was the Godsend for me. I am also on low dose prednisone and desperately want to get off of that. You take care and good luck in your journey 🍀Nan
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