Phew!🙃 Latest round of tests is complete!

[1985mum]

So I had the MRI and I haven't got the official report but I don't think there's anything concerning there. Blood tests all came back normal except plasma free metanephrines were high so will call the doc and see what he says.

The tilt table test I had today.......

And the cardiologist stopped it after 15 minutes because he said there was enough compelling evidence in the data they collected to be able to say I definitely have POTS!!

It's kind of nice to have a firm diagnosis of something even if it's not easily treatable!!

The next question is how many of my symptoms can I attribute to POTS?🤔

[Penguintaz]

Hi there 1985Mum,

Have they not given you any leaflets or more information about it? I honestly don't know a lot but I found this on wiki: "It should be noted, however, that certain medications to treat POTS may cause orthostatic hypotension. It is accompanied by other features of orthostatic intolerance—symptoms which develop in an upright position and are relieved by reclining.[1] These orthostatic symptoms include palpitations, light-headedness, chest discomfort, shortness of breath,[1] nausea, weakness or "heaviness" in the lower legs, blurred vision and cognitive difficulties.[4] Symptoms may be exacerbated with prolonged sitting, prolonged standing, alcohol, heat, exercise, or eating a large meal"

Though the internet is not the most reliable place ands one should always ask a professional! Other than this are you well? I am glad your bloods are mostly normal

[1985mum in reply to Penguintaz]

Thankyou Penguintaz. I have read a lot on POTS as I've suspected for a long time that I have it. It's a relief to know I'm not a hypochondriac (a lot of people on here will identify with that feeling 😉). But I don't hold much hope as far as treatment goes as there's not much that can be done apart from alpha and beta blockers which is a matter benefits outweighing the side effects.

[Penguintaz in reply to 1985mum]

Oh dear! It's terrible when the treatment can be worse than the diesease :/ But I am glad to see you are trying to be positive and hopefully you will get plenty of support <3

[misty14]

Hi 1985 mum

Whilst I can't help you with the POTS diagnosis or the one blood result high, I'd just like to say I'.m pleased your getting answers to your symptoms and hopefully you can have treatment for POTS . There are quite a few on here with that diagnosis so will be able to help. All I know is quite a few symptoms are very similar to lupus. It must be a relief to get answers to your problems!. Good luck with the MRI report. X

[EOLHPC]

Thanks for your news...and CONGRATS 👏👏👏👏 this is a BIG 💡💡💡💡💡breakthrough in diagnosis: am DELIGHTED for you...imagine you're Celebrating

🍀😘🍀😘🍀😘 coco

[1985mum in reply to EOLHPC]

Yes I am feeling overjoyed I'm getting to the pointy end of all this investigation fuff!!

Just my luck tho after a difficult run so far I end up with something that's difficult to treat! Grrrr me!😧😉

[EOLHPC in reply to 1985mum]

This is True! difficult to treat is The Crux of POTS. 🤗 Understanding as much as poss about you're version can make individualised management more effective. Take this the proverbial: 1 Step @ a Time 😉 🍀😘🌷

[1985mum in reply to EOLHPC]

Very sound advice.😉🤗