I'm really struggling trying to figure out what's a side effect of the 60mg pred, 20mg weekly methotrexate, 400mg hydroxychloroquine or whether it's actually the lupus/pots syndrome i have.
I've been down to 40mg pred, back up to 50mg, then 60mg again. Then down to 50mg - had a seizure so back sitting at 60mg. I seem to have become intolerant to just walking once round the shops before I get clammy, can't focus/concentrate, really really jittery and lots of other things too.
I try to think what I was like before the steroids and I think I managed well enough! Just had very stiff and very painful joints and was fatigued. None of this mind stuff where I feel like such a different person. I'm usually a fussy eater as well and now I'm wanting to try all kinds of stuff - guess the increased appetite has something to do with that though! Weird. Xxxx