Been absent for a while - after my pip tribunal I decided to take a step back from everything and just recover for a bit.
Anyway - having lost my tribunal I asked for the statement of reasons from the court which arrived a couple of days ago. The first paragraphs states that I also have an underactive thyroid, vitamin d deficiency, asthma and osteoarthritis but that I don't take any medication for these. So clearly they didn't take any notice of the long list of prescriptions I had printed for them and handed in when I arrived, and the list of medication included throughout the paperwork and included on all the hospital letters they had then! I was just absolutely gobsmacked and it makes me doubt whether they took any of my evidence into proper account.
They then stated I told them that I could walk the 100m from one end of my high street to the other and wandered around the shops when I went out which was the exact opposite of what I actually said. I used the high street as an example of what I COULDN'T walk when I go out! They used this as one of the examples of why they rejected the mobility part of my appeal. I've now asked for a record of proceedings which will hopefully back up that they have got that bit wrong.
And finally they stated that I go to London every few months and attend the hospital at Guys and that this together with me actually attending the tribunal which required me to walk more than 60 metres showed that I can walk more than 20 metres as otherwise I wouldn't be able to do these.
So no account taken of the pain I was in as advised to them, that I'd had to use my inhaler when I got there as my breathing had been affected, that I'd had to take additional anti histamines as I could feel myself reacting to the lights in the centre, that my walking got slower and slower while I was moved between rooms, that I'd had 2 days off beforehand to prepare for it and that I stated that I'd be wiped out for days afterwards (it was actually well over a week), that I pointed out that I swell really badly when I go to Guys, that the consultant has told them he's seen my joints inflamed and my difficulty walking when I'm there, that I told them it takes 3 days on average to recover after, that I can't collect my prescription when I'm there because I am suffering so badly, that I have no option as it's the only facility that can treat my severe level of photosensitivity, that it takes me 20 minutes to walk a distance that is shown to be 5 minutes maximum on the hospital website ... none of that taken into account.
I wasn't going to appeal and had decided to just let it go but I'm now so angry at the way this has been dealt with that I'm in contact with a local charity disability advocate who is going to see if she can help me get the tribunal decision vacated on the basis of fairness etc. She has then advised that my doctor should provide me with a letter stating that I cannot attend a hearing due to my particular conditions and state that any repeated tribunal be carried out in my own home or by telephone due to the impact it has on my health. She was also horrified on the few things I've emailed to her that st no point did the tribunal suggest adjourning to request additional medical evidence as they cannot possibly be qualified to make a proper judgement based on the extreme rarity of the problems that I face.
From my initial assessment to the mandatory reconsideration to the tribunal onwards the entire system has been an absolute joke. The way it's all been handled has been totally incompetent and misinformed and at no point has anyone actually listened to what I've said but have twisted and misunderstood and misrepresented it every step of the way. It's not like I'm asking for the moon - all I want is a proper and fair assessment and my award decided based on this. You'd think that would be easy right?
Oh well next stage of the fight is about to begin. I'll let you all know how it goes but I'm not holding out much hope if im honest.