Lupus is causing a major issue in my family. My mum was scheduled to have a colonoscopy appointment in Manchester and I was meant to drive her there. Unfortunately I woke up with a headache, I thought it was my glasses so I put on my contact lenses.
I wasn't feeling too good but I thought I could manage. By lunchtime I got home took my medication & told my mum i was going upstairs to lay down abit b4 going to pick my son from school . I wanted my mum to rest while she prepares herself for the procedure. I set my alarm for 2.30. My headache was getting worse I felt sick. When my alarm rang, I got up used the toilet, I tried to see if I could go pick my son up. I was in agony and knew I can't drive in that state. I had to call my mum to get him.
My situation got worse so we realised that I can't drive her to her appointment and I can't be left on my own. So she called the clinic and canceled the appointment.
My mum and son has sacrificed a lot due to my illness. it is sad that one cannot predict what will happen in the next minutes. It not only affects life but it affects the life of those around me.
Is it possible that being off steroid for a couple of days can cause a flareup? I ran out of my steroids 4 2day and all hell was let loose. I am bit worried I may have a chest infection, bcos my coughing is bad but my dentist gave me some antibiotics bcos I also have a gum infection. Hopefully this will clear the cough too. Take care and God bless