Friday was my birthday the 20th of sept. i had a miraculous day. i was able to go to church in the morning, make a huge breakfast, had a lye down, watch some home video's the had my favourite african delicacy. little did i know that my day was not over dat my happiness will be shortlived. i woke up in the middle of the night with a banging headache, i had to take tramadol and paracetamol. the headache persisted all through the next day accompanied with nausea and entire body ache. I felt downcast and was unable to sleep. I also removed my contact lenses to know where the pain is coming from. This morning i have been unable to go to church cos i dnt feel well enough will say my prayers at hope. Lupus is not what we all bagained for. I always ask when will it stop. I dont arrange appointments cos i dont know how the day will turn out even my therapy appointment is becoming more difficult bcos the enomous pain i have after making that journey. It is a though ride. I am hopely starting Retoximab next friday i hope it works for me.
thank you all for listerning