I wasn't sure where to put this post.... I dont ask questions and I very very rarely give advise as there are many well qualified and more knowledgeable people here than me.
Ýou all know how I write, honest, open and sometimes emotionally but never without passion, laughter and a hint of distain for so called professionals. You guys though, I have the utmost respect for.........so.....I could really use some help.
I had such a strange, terrifying and worrying experience last night, that it has left me feeling worried, vunerable and frankly **** scared.
It started with one of my usual, milder costro attacts, itvleft ne unusally tired, which resulted in me retiring to bed early and missing Adele at Glastonbury.....very pi.....ed off bunny..😕.
I fell asleep to my meditation music, only to be jolted awake with severe pins and needles all over my lower and upper body, as it spasamed with its usual evening/night pain......
The difference this time was.....I could not move..... seriously, my mind was wide awake (yes, I know you find that hard to believe guys..lol) I was awake.. but no matter how hard I tried, I could not move.
I have no idea how long this lasted, it seemed like an hour or so, each time I told my body to move, it wouldn't... I was struggling to breath, finding it hard to swallow and frankly thought I was having a heart attack instead of a costro attack. I WAS PETRIFIED....nothing was working from my neck down, my eyes, ears and mind seemed fine, but the rest if me was another matter.....
When it finally passed, it was still dark outside and when I tried to stand, I promptly fell and it took a further 3 hours for all my facalties to return, the pain to subside and my mind to become clear again (thats not easiy in normal circumstances! ).....I had no loss of speech or vision after but have struggled all day to function at my normal, for me, level.
It has left me exhausted, with a roaring headache, scared and worried. This has never happened despite night sweats and nightmares and all the other things lupus throws at you when you try to sleep........
What was this.....Anyone know or experienced this
ANY HELP AT ALL - please, it would be greatly appreciated. Thanking you in advance.