I have Lupus and was diagnosed in September 2010.
I have been off work with my Lupus symptoms since September 2011, there is not a part of my body that Lupus does not affect, I have joint and muscle pain on a daily basis. The medication I am taking as stopped working and am now waiting to see my consultant who as also been off sick since September, next appointment July!
I've gone from being a very independent single parent with 2 children working 7 days a week, to being a very weak and useless individual who can barely manage to get out of bed most days.
I am going this week for my ESA medical and after hearing all the horror stories am beginning to worry about it. (looking fine on the outside/not feeling fine on the inside) My memory is awful and I'm afraid I will go into the medical and just forget everything.
I have seen on some posts about a supporting letter for Lupus sufferers, can anybody point me in the right direction to get some info on this?
I would be most grateful for this.
May you all be having a pain free day.
Thank you : )