Pains in Hips and lower stomach

[tinkslupus]

Hi all , Happy New year , does anyone else get pains in their hips and lower stomach at all , been having it on and off for weeks .

[Purpletop]

I do. I've just had an MRI of the pelvic area to check what causes the pain. I'm on steroids and these could cause avascular necrosis of the bones, I'm wondering whether the hip bones have somehow been affected.

On the other hand, I've been having these symptoms on/off since two years ago when I had lumbar puncture. In principle, it shouldn't have any effect on the hips but it does seem a bit of a coincidence to me that the pain started after the puncture and I hadn't had it before.

[Purpletop in reply to Purpletop]

p.s. I don't yet have the MRI results.

[tinkslupus in reply to Purpletop]

Thanks purple top

[misty14 in reply to Purpletop]

Hi Purpletop

Good luck for MRI result. Hope you get the pain sorted. X

[Purpletop in reply to misty14]

Thank you, Misty. The MRI showed coccydynia, though the rheumatologist didn't venture an explanation as to its cause - I've never injured my tailbone, so I don't understand why I got this.

Anyway, as in the meantime I'm having another bout of pericarditis, he said that the colchicine I'm taking for that will also help the coccydynia.

[tinkslupus in reply to Purpletop]

Sorry to hear this I hope things improve stay positive x

[misty14 in reply to Purpletop]

Hi Purpletop

Sorry you've got a bout of Pericarditis but glad your taking Colchicine for it. Hope it is working because it has helped mine greatly. Are you going to stay on it?. My Rheumy said to stay on it to bring the steroids down which I am gradually doing.. The more scans you have the more they find things which may or may not be helpful!. Not nice having a painful cocyx, hope it's soon better. X

[Purpletop in reply to misty14]

I'll be on colchicine for 3 months, apparently. Hopefully I won't get any kidney problems with it because otherwise damage is irreversible.

3 years ago when I went to my GP and asked for colchicine for pericarditis he looked at me as if I was crazy. Then he reluctantly prescribed it, probably just to get me out of the door. I took that for about 2 weeks with great results, only to be told by the rheumatologist that I shouldn't take it, so I stopped it. My cardiologist also supported steroids at the time, not colchicine, despite my telling them about reading that they cause recurrence.

Now both the cardiologist in the hospital and the private one I'm seeing, can't recommend colchicine enough. Why? There has finally been a published study about a colchicine trial for acute and chronic pericarditis - Nov 15 I think - so they're all keen to prescribe it. And I've been told to reduce steroids.

Unbelievable.

[mariearmstrong]

I never experienced the hip and knew pain until I was put on high dose of steroids for 3 months. around month 2 I could barely walk and occasionally used crutches. the doctors xray'd my hips to be sure nothing was wrong or cracked or broken. the steroids make your hip joints volunerable (all your bones actually, but hips hold the most weight) I have noticed a small decrease in pain while weaning off steroids, but cant wait to see if it disappears all together after im done. I went on the drugs to ease the pain of lupus and all its annoying symptoms, I don't want to add many more annoying problems from the drugs that are supposed to help. in the meantime the only thing I can suggest is not to jump off anything or sprint down the street, your hips and bones are volunerable when on steroids

[tinkslupus in reply to mariearmstrong]

Thank you for your advice mariearmstrong .I'm not on steriods currently but have had the hip and stomach pain for around 6mths .. my bowel habits have change dramatically also not sure whats going on but it isn't pleasent sorry tmi . At the drs fri and rheumy Sat so hopefully will get some answers .

[Tinky52]

Tinkslupus, I have pains throughout my body and my hips hurt really bad but I've also been diagnosed with Fibromyalgia which also hurts every joint! I also have pains in my lower stomach and no explanation. Crazy how these Rhuemy Dr's all seem to have their own answers yet they never make sense!!! If anyone else finds answers please let us know thank you!!

[tinkslupus in reply to Tinky52]

Tinky52 thankyou , its early days for me yet but have had most symptoms for years . Every post I read sounds just like me its bizzare .

[Tinky52 in reply to tinkslupus]

Tinkslupus I know exactly what you mean! I have and have had things that I thought I had, and I did, but I'm the one that had to point it out to the Doctor and yes it is bizarre cause they are the Specialists. Now I'm diabetic, have Thyroid problems, my stomach bloats I get these headaches that are there everyday! Always a sore throat, mouth sores and hoarse.. Is this all common? I never get answers when I go to my Rhuemy just "ok see you in 3 months " so frustrating..

[tinkslupus in reply to Tinky52]

I'm exactley the same , I hope the listen its so frustrating and you can feel like a hypochondriac most of the time .. get fed up of hearing myself complain .

[mariearmstrong in reply to Tinky52]

well I must be very special these days cuz I got a "see you in two months" from my Rhuemy today LOL. She wanted to amp up my steroids today and I have been trying to wean for 3 months, I don't think so. I think Im going to continue weaning. I am using crutches to walk and I suspect its the steroids. Im also on Plaquenil for the first time and plan to stay on it, so I hope it has nothing to do with the poor walking ability and hip pain. next week I go on cellcept. anyone have any experience with that?

[ava97 in reply to Tinky52]

same problem here.i just get angry everytime.i can't eat anything beacuse of this sore feeling.and u know i also have e lower stomach problem is that common for lupus patient?whenever i ask this to my doctor he said "it's ok".i really dont't know is it ok!!!!i am facing trouble for this but he seem less interested.i am facing a lot of problems just for streiod.my hand gets dry always.what u guys do for this??