I know it's been a while since I've been on but after work I'm too exhUsted to even do anything. I have had lupus for a long time now related with it fibromalgia, auto immune hepatitis, memory loss (bad) and my spine is giving way. I am full doses of hydrochloraquine steroids painkillers and methatrexate. I am so tired !! I have constant headaches my back is in so much pain that I am loosing the use of my right leg and now cannot go anywhere for more than ten mins. It's now at the stage were I'm struggling to drive. I work full time and I have always had a positive attitude that attitude is going fast now. I think that if my back could be sorted out my positivity would come back but hospital have said there is nothing more than can be done...... It's soul destroying that I can't remember a lot of the things we have have done has a family. It scares me that it won't be long before I can't walk at all... And I still have to carry on working ... I don't know what sort of answers I will get from you lovely people .... Just needed to have a rant .... Xxxxxxxx
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