I am 24. I was diagnosed 5-6 years ago with lupus and sjogrens syndrome. I was unhappy with the care I was receiving locally so asked for a referral to Leeds.
Leeds are confused about my diagnosis as there is nothing much in my bloods and as a result are not sure how to treat me.
They have refereed me to an immunologist and want me to have a biopsy as they are now questioning primary sjogrens (my bloods are negative).
My worst symptoms are fatigue, headaches, temperatures, dry eyes and mouth, swollen lymph nodes and sore throats(the swollen glands and sore throats occur weekly).
I am at a complete loss as to what to do. All I want is a diagnosis and treatment.
I am feeling so upset and frustrated right now as I have been battling for treatment and support for so long and am so worried that everything will come back negative and I will be left with no support at all.
I am also very anxious about having the biopsy done.
Any thoughts would be appreciated