Dry mouth: Hi, my husband has SLE lupus, he suffers... - LUPUS UK

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Dry mouth

Charmaynej profile image
11 Replies

Hi, my husband has SLE lupus, he suffers terribly with a dry mouth.

Any tips on how to help with this please .

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Charmaynej profile image
Charmaynej
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11 Replies
Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Has he also been diagnosed with Sjogren's Syndrome? This is another autoimmune condition that often overlaps with lupus and frequently causes a dry mouth.

Sometimes GPs are able to prescribe some special sugarless pastels that a person can suck to help promote saliva production. It may be worth asking about this.

loopy-lou profile image
loopy-lou

I have been diagnosed with Sjogren's Syndrome which causes a dry mouth. My consultant suggested chewing sugar free chewing gum to produce more saliva. I never go out (winter too) without a bottle of water. I just seem to have continual sips.

Charmaynej profile image
Charmaynej in reply toloopy-lou

Yes my Hubby is constantly sipping water, will get him some Gum thanks .

EOLHPC profile image
EOLHPC

My periodontist recommends Gengigel mouth wash & gel for the erosive ulcers, gum & roof of mouth inflammation that my sjogrens dry mouth causes. These OTC products are helping me hugely. But I do practice conscientious oral hygiene and see my dental hygienist every 3 months for my version of dry mouth. I find that making a strong pot of fresh ginger tea daily, which I use like a squash and sip 24/7, helps too. Avoiding caffeine & alcohol also makes a pos diff. I've tried biotene products, but they don't help me much. Also, artificial salivas haven't worked for me, although others benefit from them

Charmaynej profile image
Charmaynej in reply toEOLHPC

Thank you for your help .

EOLHPC profile image
EOLHPC in reply toCharmaynej

🍀👍☺️

KarenC profile image
KarenC

I have a dry mouth and eyes constantly, I have been prescribed saliva pastilles and sat and eye drops by my rhymy, they both help. Xx

Cann profile image
Cann

I keep hydrated with small amounts of frequent nutritious liquids and foods.

Lupyknit profile image
Lupyknit

It's worth asking for the saliva drops/pastilles, or getting some otc to try. Being a picky person I just didn't like them, and the effect doesn't last long. Advice from my dentist has been - together with the very frequent sipping - sugar free gum. I hardly actually chew it, but let it hang around in my mouth, especially when out and about, and it does help. For my eyes, I have regular drops from my optician, which help a great deal.

angus50 profile image
angus50

Hi

I got a dry mouth moisturizer from my as I have dry eyes and mouth. Hope that helps.

Charmaynej profile image
Charmaynej in reply toangus50

Hi thank you , yes we have seen GP and got a saliva spray 😊

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