Hi all. We had our 2nd apointment today with the paediatric dermatologist, which was a joint review with other doctors.
Isla's bloods were normal but the Dr said that lupus doesn't always show up in blood anyway, but that there is nothing else to suggest lupus at the moment. Another 5 doctors looked at her and they all agreed it's too early to put a diagnosis on it but for now they think it may be sunlight sensitivity (I'm rubbish and have forgotten the name of the condition she said, it wasn't photosensitivity, it had a more technical term. I should have written it down). Dr wants to see her again in December, as if it is that, it should fade as the sun dies out a bit. She's also invited us to a conference in February where all the dermatologists get together as she thinks that may be useful for them all to see her and discuss it there. She said she won't biopsy at the moment as is too invasive at her age when it's not immediately necessary. She says there's tests for this sun light condition but islas too young to have them.
So basically, at the moment we don't really know what it is.
I'm happy though that they are keeping a close eye on her and seem keen to get to the bottom of it ️xx