Hello all, just asking for some support. Went for my rheumi appointment a couple of weeks ago and saw yet another consultant. She said as I didn't have a malar rash and my bloods were negative I don't have lupus. It's fibro. She said some doctors don't believe in sero negative lupus. I asked if it could be scleroderma because of my skin problems and she said too soon to tell. I told her that the previous doctor at the same hospital said a form of lupus. She didn't comment. Previous doctor said they wanted to reserve steroids in case it started to affect my heart. She said if the hydroxy didn't help then they don't want to try anything else and she will see me in a year! I asked if the lipoma in my brain could cause pain down my head, neck and back and numbness in my back and tingling and she said well if it swells then it's possible. Not her remit though I need to go back to the neurologist. Should I ask my GP to refer me back to neurologist? I feel I've been put out with the rubbish and left to wither. When I mentioned my skin lesions she said what did the dermatology say? Again, nothing! Not her remit I'm guessing? Can't get sense from any one person. Spine pain see spinal surgeon. It's treating each problem individually that has nearly killed me in the first place. Rant over.
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