can anyone please tell me if or when they get the facial rash does it become very sore and burning and also very very dry.
i have one at the moment and it is very red very sore and dry and also caused swelling under eyes and puffy eyelids i even have dry eyelids too is this normal.
debs xx
Hi debs
Sorry to hear you are suffering. I am getting lots of rashes too at the moment. I can tell when it is happening as I feel burning on my cheeks and sometimes my eyes burn too. I wish I could suggest something. I just put cold water on my face. I hope someone else has better ideas. You are not alone and hope it improves soon. x
hi loopy-lou
i was wondering if you could tell me that when you get face rash does it always mean you are having a flare, because apart from burning skin i feel ok in myself, of course you never feel 100% but i dont really ache i have fatigue(but i always have fatigue) i was just wondering how you feel.
Hi Debs
I never feel totally "normal". I also get lots of fatigue. I too can get burning skin and feel ok-a bit off. I do get muscle pain and extreme stiffness when I am tired but that can happen without a red burning face. I can look like I have been under a sun bed at times!! I have a chest infection right now and the few days it was coming on I was getting a red burning face. I have assumed (had SLE for 3 years now) that it is a flare but medically I do not know. I am going to ask when I see a new consultant at a dedicated lupus clinic later this month. Do you get other symptoms?
hello loopy
sorry to hear you have a chest infection they are painful,when i go to my appointment at end of month i will also ask if face rash means a flare every medical persons says different things so i don t think anyone really knows.
i get plently of symptoms like ulsers,sore skin,muscle pain,headaches the list goes on and on its just been very warm here recently and very sunny so im sure thats got a lot to do with how i feel aswell.
its so hard though as i was due to go out for a birthday dinner party for a great friend of mine last friday and i did go but i really struggled to enjoy it and ended up being the only one not drinking(cant drink anymore or ill fall a sleep)and having to make an early exit, sometimes i really hate having lupus as it leaves me feeling so frustrated,you just cant plan things in advance because you just don t know how your going to be.
still rash is a little better today i think its starting to heal.
take care
debs xx
Hi Debbie
Yes I've had this twice and it how I got my diagnosis with blood tests too. It lasted for about 8 -12 weeks and my skin was itchy but also felt burnt and it swelled under my eyes. I too had very dry skin round my eyes. I ended up very gently applying sudocrem and it seemed to help a lot. I kept on putting my make up on over it although it didn't go on properly but I wanted to still feel as good as I could possibly feel about myself when I went out. People who know me kept asking what it was so I just told them lupus and left the ball in their court to ask further questions. Hope it goes quickly for you. Big hugs Casey xxx
hi casey
yes i also had rash when diagnosed along with positive blood tests,however this rash this time is more wide spread and very sore with swelling and facial muscle pain which my dentist thinks im suffering from stress and clenching my jaw at night which has caused inflamation.
sometimes i wonder if all my symptoms are due to lupus or just plain stress because im very stressed.
she said try and relax at night and clear your mind (lol !!!!!) yeah right if only that was possible every ache or pain im thinking is this it am i getting worse.
i don t know about you but i have found it hard to read a lot of blogs on this site as so many people have lupus real bad and it scares me death.
you take care and keep in touch
debs xx
Dear debs,
Remember that lupus is a stress-related illness. Your problems are not all due to stress, but the disease you have (lupus) will always get worse when you are under stress.
I retired in July, 2011, and now that I am not running my own small business, I am under so much less stress!! All of my lab test numbers are down and symptoms are much better. It is strange that I have had a facial rash for the first time during this relatively easy time. My labs did not get worse when the rash came. . . but that is just me, and it is only one time I have had the facial rash.
I do hope that you will be feeling better soon! Try the cream I recommended in my other answer above, after asking your physician first if it will be okay. I hope that it will help you as much as it has helped me with the stinging and burning.
All the best to you,
Lorelei
Hi Debs
Forgot to add I too have positive blood results. Just reading more I too have lots of stress right now. I have read to avoid stress with Lupus...ha..ha..How?! I have had jaw pain in the past which is awful. Currently with the chest infection my neck has swollen up like a toad?! Even the dr didn't know why. I have come to the conclusion it is one thing after the other with no reason. Hope you are feeling better soon x
Hi, debs!
I have had lupus for 15 years and just got the facial rash for the first time last month. It has lasted for 6 weeks so far. I am not having a flare, so it seems strange to me that it is happening at this time.
I have very, very fair skin. It used to tan golden but would burn in addition to tanning every time I went in the sun all summer. Since I have had lupus, one of the first things I noticed, was that I no longer tan at all, just turn bright red.
However, I had not been in the sun at all when this facial rash started. My rash is bright pinkish purple. My skin is fairly smooth but very tight and swollen. It stings and burns all the time. Just touching the skin makes it hurt worse. Rinsing my skin with plain water is also very painful. I was blotting it dry and not putting anything on it until my rheumatologist told me to buy over-the-counter hydrocortisone cream 1% at the pharmacy and put that on the facial rash every time I wash my face and repeatedly during the day. THE HYDROCORTISONE CREAM HAS HELPED A LOT WITH THE STINGING AND BURNING!! My rheumy did say that I should not continue to use it for more than one month because it may make the skin on the face thinner. Of course, you need to ask your physician if it will be okay for you to use this cream, but it has helped me so tremendously, I really wanted to tell you about it. It did NOT make the rash any less pink/purple, but it did make it feel so much better.
I wish you all the best luck with your rash. I hope that it will be over soon! And I hope that your doctor will let you try the hydrocortisone cream and that you will get the relief from pain that I did!
Take care of yourself, debs!
Lorelei
hi lorelei
thankyou when i go back to docs i will ask for something its nots so bad today, it is the swelling that worried me because you read horrible things about swelling and kidney problems that you just get very frightened. im very new to lupus as i was only diagnosed in february 2012 and had not even heard of lupus till i was told i had it.
sadly i have done a lot of research on the net because of lack of information from docs and by doing that i have scared myself to death.
but talking to others here has really helped me
thankyou everyone!!
debs
Hi i didnt relise i had a rash as iv always had red blochey cheeks ,but my dermatoligist said it was the lupus rash so if it is mines there all the time and if my pain gets worse my face dont get any redder lol but they do say every one is different i have also got alot of brown patches on my face to due to the lupus and going in the sun ,
I also have the same burning like I am sunburnt its really sore I cannot sleep with it I swelling aswell it comes and gos steoids is the only thing that helps
I AM PR3S3NTLY HAV!NG TH3S3 SAM3 SYMPTOMS(SCARY) THATs WHY ON CAM3 ON H3R3
I HAVE THESE DRY BURN PATCHES THROUGH OUT MY BODY.I HAVE HAD THEM BEFORE BUT THIS TIME THEY ARE ON MY EYELIDS and THE CORNERS OF MY EYES.THERE IS ANOTHER ONE BETWEEN MY NOSE & MOUTH...30yr old African american female LUPUS since 2008
New to lupus - bad facial rash
Does anyone with Lupus/SLE/APS get this type of facial rash/blistering?
Does you facial rash come and go throughout the day?
