LUPUS UK

PIP award

I thought this may be of interest to some of you.....

I applied for PIP on 13th March 2015 after 2+ yrs of on going health issues. I have not been officially diagnosed but an autoimmune / autoinflammatory condition is suspected. My condition and ailments change constantly, so filling out the form was difficult. After googling for advice I decided to fill the form out answering as if it was an average day, however I also wrote how I was affected on my worse days (I was advised I may be entitled, but didn't want to be accused of fraud if I was awarded and then spotted out the house on an particularly good day).

My assessment was scheduled for 15th April, however I had to cancel as I was in hospital for the whole of the week. The assessment was rearranged for 27th april. I had to take all medication, relevant letters (including my discharge letter to show why I was unable to attend the first assessment date).

The lady who did the assessment was very nice. She had a friend who had lupus so was aware of how the conditions can fluctuate. It lasted approx 90mins and included a memory test and some basic stretching exersises. Again Made sure I told her about average days, good days, and bad days.

I am pleased to say that today I received a letter saying that I had been awarded both daily living and mobility at standard level, meaning I can now apply for a much needed blue badge.

There are lots of posts on here and on similar sites, with stories about people being declined PIP, or having to wait months and months for a decision, I thought it may give people some hope and encouragement if I posted a positive experience of the PIP process.

8 Replies
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Thanks Heather, all information is really welcome here.

Glad you received a decision.

Hugs OOO

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Brilliant! Well done ,glad it all went wellx

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So pleased to hear you've been successful for receiving pip. I also went through an assessment & thought I was understood how my conditions effected me, but I wasn't awarded pip. I have asked for it to be reconsidered & sent further info from my rheumatology doctor. I have sle & Sjogrens, ana & ro positive. What a difference it makes when your assessed by someone who understands. So pleased for you, good to hear some good news on this subject.

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Thanks, just thought it might give people some hope to read a positive story.

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Well done yes it's worth going in for I held it off for a year but then put in for it and got it

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Congratulations, I'm so glad it went well 👍👍👍😊

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Thanks for all the positive responses......... I feel Ive been knocked off my perch a little, after yesterdays visit to rhuemey. All blood tests came back negative, so now back to square one :(

I've had 2 1/2 years of illness, operations, and uncertainty as to what causing long list of symptoms. all docs, consultants, and even rheumatologist where convinced I had some sort of autoimmune condition, but now blood tests are negative, I feel like I've just been cast aside and feel like a fraud yet again.

Anyway, on the plus side, atleast i can now apply for a blue badge, so getting to and from never ending doctors appointments wont be such an ordeal lol

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HI Sorry to hear you have no diagnosis but congratulations on your award. I understand entirely how a Blue Badge can help and you have given me hope for when I apply for PIP and hopefully a Blue Badge.

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