LUPUS UK
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Pip

Hi everyone just got my pip consultation after a very long wait just woundering what it is like and if any advice for me any advice would help thanks

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When you answer the questions don't think about how you are feeling that day (it might be a good day) think of the really bad days and what you can't manage. its too easy to say oh I'm ok when we're not really.

Hope it goes ok.

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As Chris21 said plus take someone with you. My daughter kept interupting and saying no you can't do that I watch you.

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Hi

Ask to record the assessment as they have a habit of not writing down what you answer

Have you looked at the Benifits and Work site

Used these last time I filled out my forms for DLA (Christmas gone) straight through plus no medical.

Good luck

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Hi all, I had my PIP assessment yesterday. I took my niece with me & thank god I did. I was in a flare & have a chest infection. At times I was a blubbering wreck, but my niece was able to answer questions about me & the assessor directed questions to her. I also took notes with me about what I'd wrote on their assessment form. I found that very helpful. The assessor was very patient with me, giving me a breather when needed & explaining everything that she was doing & why. She noticed I'm light sensortive & turned lights out & closed blinds for me. All this gets put on your report. I also requested permission for taxi expensive as it was a sunny day & I cant use public transport due to sun through windows (I end up playing musical chairs n dodge the sun games which is stressful) plus been on immune suppressants I get paranoid about other people sneezing etc. All this is taken into consideration. Its your daily life battles after all. She asked me about washing & dressing, no prob in answering there, I'd just spent two days mostly in bed n didn't have energy to wash or change pj's. This can happen often. It was a challenge to get to the assessment, but it means so much to me to be awarded payment. Sorry I'm waffling now, just make sure you tell them about how your Lupus affects you on bad days, as others have said. How much you depend on others to help you & how your life has changed so quickly. I'm sat with fingers crossed waiting for the brown envelope with my decision, good luck to you x

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Good luck I took my husband with me I forgot think and did not understand think so my husband sed it for my she told him to shut up I had to be the one to talk not him I got my brown envelope I got PIP but standard for both just one point off and 2 points off the other hope you get yours

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Thanx for your good wishes Lesley61. Fingers crossed for good result for anyone applying for PIP X

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Fingers crossed for you let us know how you get on xx

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Well Lesley got my brown envelope back witha big fat NO I got o pionts for everything so therefor I'm not sick at all I would like them to come and-see me on a bad day when my children are getting me out of bed you must have to be nearly dead to get something ,like I have to get up no matter how bad I am I have children so I don't have a choice ah well I ssid I would let you know. I think you would be better off telling them lies. Will have to struggle on

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I am so sorry for that you not getting it u can phone them up for a mandatory discussion did you get any points at all then you can take it to tribunal hope you go for it again who helped you fill your form out best of luck in wot you are going to do can not believe they did not give it xx

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Yes always take some one with you tell about your bad days and wot aids you got to help you with getting up stairs and sticks and for bathing and rails for getting up stairs with and if you got ant think helps you in the kitchen they will Aske if you can cook too x

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Thanks for all ye'er advice but neve got untill this morning in the waiting room so don't know how I got on I think I didn't tell how really bad a bad day is well just have to wait and see so thank ye all very much

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