Just letting all the good folk here find out how I survived the wedding ! They all encouraged me through a bad spell a few weeks ago. I was totally dreading the first of three family weddings on Easter Sunday(three sons marrying in three months!) as I was having a miserable time with return of horrid symptoms from the Sjogrens and Biliary Cirrhosis.
I developed a bad bile duct infection just the week before and realised the oral Pred was actually making it worse so I weaned of with Hydrocortisone, I also had a Depot Medrol Injection six weeks ago.I ate nothing but porridge and stewed apples,not together , for the days up to the big day,and the bile duct settled.
Well on the big day, the sun came out, and the newly weds even got photos on the beach. I risked the Pred again and this time only positive effect and I enjoyed the lovely wedding meal and had so much more energy.
When we live in such uncertainty all the time with illness it feels like a victory to have managed to have a glorious day with all friends and family.
I want to thank you all who gave me such encouragement and positive feelings that all would be well on the day!
Somehow too you body rises to the challenge and provides extra adrenaline, I can't drink alcohol at all but felt on a super high the whole day!!!!
As to be expected it ispay back time now , and have been in bed since ,totally poll axed but it was all so worth it.
I am off to see the biliary consultant in Glasgow today and he was willing me through it all too ,as was my Rheumatologist!!!!
I think all those positive vibes really really help, so thank you all so much, and this great forum where we can spill out all our hopes and fears and find people like ourselves giving us that special listening ear, because they have all been there too!