Hello. I've had lupus for over 12 years I was diagnosed when I was 18. I have never been on one of these sites but I am kind of feeling scared and frustrated today so I thought I'd give it a go.
My Lupus led to kidney failure almost immediately. In retrospect I probably had it for years and was misdiagnosed. I've been in remission for almost 4 years, but I still experience all the lupus aches and pains in my hips knees and ankles. Also I'm incredibly sensitive to the sunlight.
For the past year or so I have noticed the strange symptom where my skin will feel like it's on fire or I have road rash all over. My clothing hurts my skin, ANY touches, even the bottoms of my feet hurt! Sometimes it will be a random small patch of skin, or sometimes, like today...My entire body feels like I've been skinned alive. It will last anywhere from an hour to days. Seems pretty random, except that the sun will ALWAYS make is worse. Almost unbearable.
I've been reading up on people's posts and blogs and I've noticed a common thread amoung people with Fibromyalgia.
Obviously I'll be going to my Rheumatologist asap....but I kinda hate Western medicine sometimes and I'd love outside opinions.
Thank you in advance!!