Search
Search
About
Log in
Join
Experiences with
Benlysta
Posts
Communities
68 public posts
Filter results
Anyone take Saphnelo infusions? Would love to hear feedback...
Similar to
Benlysta
but not as much research out yet... thanks.
Similar to
Benlysta
but not as much research out yet... thanks.
amberb444
in
LUPUS UK
15 days ago
Equivocal Dsdna
I’m on
Benlysta
monthly infusions which has massively dampened down my symptoms. Has anyone had this equivocal result and could explain what it might mean? Thank you.
I’m on
Benlysta
monthly infusions which has massively dampened down my symptoms. Has anyone had this equivocal result and could explain what it might mean? Thank you.
Mooncat111
in
LUPUS UK
4 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Patients receiving IV cyclophosphamide were 75% less likely to achieve a complete response than those treated with tacrolimus, and 92% less likely than those treated with
Benlysta
(belimumab) plus MMF.
Benlysta
is an antibody designed to reduce the production of disease-causing autoantibodies.
Patients receiving IV cyclophosphamide were 75% less likely to achieve a complete response than those treated with tacrolimus, and 92% less likely than those treated with
Benlysta
(belimumab) plus MMF.
Benlysta
is an antibody designed to reduce the production of disease-causing autoantibodies.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
The results showed that, compared with 2022, the use of both
Benlysta
and Saphnelo increased by 32% in both regions.
The results showed that, compared with 2022, the use of both
Benlysta
and Saphnelo increased by 32% in both regions.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Rituximab. V benlysta
Hi everyone Hoping to get some advice from this amazing group. So, I've been on benysta for about a year and though its helped I still have a lot of fatigue and am struggling a lot. My doctor has suggested Rituximab and was wondering if anyone else has made the switch? Or if you are on rituximab -
Hi everyone Hoping to get some advice from this amazing group. So, I've been on benysta for about a year and though its helped I still have a lot of fatigue and am struggling a lot. My doctor has suggested Rituximab and was wondering if anyone else has made the switch? Or if you are on rituximab -
Literatureteacher
in
LUPUS UK
1 year ago
2 New Meds Found to Completely Change Lupus Nephritis Treatment
According to Spherix,
Benlysta
was more commonly given to patients having more severe skin involvement.
According to Spherix,
Benlysta
was more commonly given to patients having more severe skin involvement.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
B-cell protein sBCMA may be useful biomarker of SLE activity in children
Future studies to investigate the effects of more recently approved SLE therapies, such as
Benlysta
(belimumab), are also warranted, the researchers wrote.
https://lupusnewstoday.com/news/b-cell-protein-sbcma-useful-biomarker-activity-children/?
Future studies to investigate the effects of more recently approved SLE therapies, such as
Benlysta
(belimumab), are also warranted, the researchers wrote.
https://lupusnewstoday.com/news/b-cell-protein-sbcma-useful-biomarker-activity-children/?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
SLE patients may have reduced response to COVID-19 vaccination
A lower vaccine response also occurred in patients undergoing treatment with CellCept, tacrolimus, and
Benlysta
at the time of vaccination.
A lower vaccine response also occurred in patients undergoing treatment with CellCept, tacrolimus, and
Benlysta
at the time of vaccination.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
long haul travel with refrigerated meds
Hi, I recently started
Benlysta
which needs to be kept in the fridge. I’ve done a few short flights & have a travel bag with ice packs which works well. I’m flying to Canada in the summer which will take about 2.5 days so my ice packs would have melted.
Hi, I recently started
Benlysta
which needs to be kept in the fridge. I’ve done a few short flights & have a travel bag with ice packs which works well. I’m flying to Canada in the summer which will take about 2.5 days so my ice packs would have melted.
SonyaNME
in
LUPUS UK
1 year ago
SMC approve belimumab (Benlysta) for use by NHS Scotland
[u]
What is belimumab (
)?[/u] Belimumab, which is also known by the trade name
Benlysta
, is a type of drug called a biological therapy. It was the first newly developed treatment for lupus in over 50 years, created by GlaxoSmithKline (GSK).
[u]
What is belimumab (
)?[/u] Belimumab, which is also known by the trade name
Benlysta
, is a type of drug called a biological therapy. It was the first newly developed treatment for lupus in over 50 years, created by GlaxoSmithKline (GSK).
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Benlysta Side Effects
I had my first
Benlysta
Infusion last Tuesday and a few days later I began having fevers at night and early in the mornings. I also have crushing pain in my neck and chest. I'm thinking that I shouldn't take the drug again.
I had my first
Benlysta
Infusion last Tuesday and a few days later I began having fevers at night and early in the mornings. I also have crushing pain in my neck and chest. I'm thinking that I shouldn't take the drug again.
purejoy
in
LUPUS UK
2 years ago
A Phase 2 trial testing the effectiveness of afimetoran, Bristol-Myers Squibbs
The trial is recruiting participants at a site in Germany.Two disease-specific treatments have been approved to date for lupus: AstraZeneca’s Saphnelo (anifrolumab) and GlaxoSmithKline’s
Benlysta
(belimumab).
The trial is recruiting participants at a site in Germany.Two disease-specific treatments have been approved to date for lupus: AstraZeneca’s Saphnelo (anifrolumab) and GlaxoSmithKline’s
Benlysta
(belimumab).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Help with Lupus-RA Overlap biologics treatment options
The doctor says Orencia is her first pick of a drug to try, but could prescribe Actemra or
Benlysta
instead. She asked to choose between continuing with the Orencia injections weekly, switching to Orencia monthly infusion, weekly Actemra, or weekly
Benlysta
.
The doctor says Orencia is her first pick of a drug to try, but could prescribe Actemra or
Benlysta
instead. She asked to choose between continuing with the Orencia injections weekly, switching to Orencia monthly infusion, weekly Actemra, or weekly
Benlysta
.
KevDog41
in
LUpus Patients Understanding and Support
2 years ago
Benlysta
I was diagnosed with lupus last year and the doctors want to give me
Benlysta
. What is it like? I know it suppresses your B-cells which means you're more susceptible to infections (like COVID). What has been your experience? Did you have to take plaquenil as well? Any advice would be wonderful!
I was diagnosed with lupus last year and the doctors want to give me
Benlysta
. What is it like? I know it suppresses your B-cells which means you're more susceptible to infections (like COVID). What has been your experience? Did you have to take plaquenil as well? Any advice would be wonderful!
Tonkotsu
in
LUPUS UK
2 years ago
Researchers discover the genetic cause of lupus:“While it may only be a small number of people with lupus who have variants in TLR7 itself,
(
(belimumab)
“This is the first time a TLR7 mutation has been shown to cause lupus, providing clear evidence of one way this disease can arise”.
(
(belimumab)
“This is the first time a TLR7 mutation has been shown to cause lupus, providing clear evidence of one way this disease can arise”.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Belimumab (Benlysta) has been approved for the treatment of SLE by NICE
Hi everyone, We are pleased to report that, following their recent appraisal, NICE has recommended belimumab (
Benlysta
) as an option to be added to standard therapy for some lupus patients.
Hi everyone, We are pleased to report that, following their recent appraisal, NICE has recommended belimumab (
Benlysta
) as an option to be added to standard therapy for some lupus patients.
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Lupus Research Alliance Applauds U.S. FDA Approval of AstraZeneca’s anifrolumab-fnia (Saphnelo™) for Systemic Lupus Erythematosus (SLE)
The FDA approved
Benlysta
(belimumab)—the first targeted therapy for lupus—in 2011 to treat systemic lupus in adults. The FDA later approved
Benlysta
to treat children with lupus down to 5 years of age.
The FDA approved
Benlysta
(belimumab)—the first targeted therapy for lupus—in 2011 to treat systemic lupus in adults. The FDA later approved
Benlysta
to treat children with lupus down to 5 years of age.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Have you ever been treated with belimumab (Benlysta)? Please share your experiences!
Have you ever been treated with belimumab (
Benlysta
)? If you have, we'd like to hear from you. NICE is currently appraising the use of this medicine within NHS England and your experiences could help improve our stakeholder contribution.
Have you ever been treated with belimumab (
Benlysta
)? If you have, we'd like to hear from you. NICE is currently appraising the use of this medicine within NHS England and your experiences could help improve our stakeholder contribution.
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
New to PBC group
The medications I take are 300mg plaquenil, 200mg
benlysta
shots once per week for Lupus, started taking iron again 65mg per day, milk thistle, fish oil. Amlodipine 5mg hypertension. Reason I was seeing docs so frequently recently was due to abdominal pains in August and again since January.
The medications I take are 300mg plaquenil, 200mg
benlysta
shots once per week for Lupus, started taking iron again 65mg per day, milk thistle, fish oil. Amlodipine 5mg hypertension. Reason I was seeing docs so frequently recently was due to abdominal pains in August and again since January.
Lorelle09
in
PBCers Organization
3 years ago
Unexplained Mouth pain
My dentist first suspected that it was some kind of chronic gingivitis and that it was a side effect of my medication
Benlysta
, which I paused. However, since then the symtoms are getting worse.
My dentist first suspected that it was some kind of chronic gingivitis and that it was a side effect of my medication
Benlysta
, which I paused. However, since then the symtoms are getting worse.
Kahina
in
LUPUS UK
4 years ago
1
2
...
4
Next page
Filter results
Clear filters
Posted in
All communities
LUPUS UK
40 results
LUpus Patients Understanding and Support
21 results
Hughes Syndrome APS Forum
4 results
View top 10 communities
Sort by
Most Relevant
Newest