I'm reading 'Lupus Underground' by Anthony DeBartolo, 'a patient's case for a long ignored drug free non-patentable counter-intuitive therapy that actually works'. It's a light treatment that has been shown in many studies to be successful in relieving Lupus symptoms such as rashes, joint pain, depression and sun sensitivity and involves an ordinary sunbed fitted with very specific UVA1 lights. If they are not the right type of UVA1 light bulbs it can make you worse.
As it's not patentable and therefore big pharma can't make money out of it, I guess it will not get funding for clinical trials and will therefore be forever sidelined.
But hell, we should be demanding clinical trials if it helps us without causing side effects or draining the coffers.
Even St Thomas's Lupus website mentions it saying studies look promising and a book has been written about it by Hugh McGrath so they seem to be positive about it.
So why aren't they offering it or at least testing it?
Where in the UK can I try it?
Has anyone tried it?
Is there any clinical testing going on?
Has anyone tried getting hold of a machine or making one?