Urine infections

[mojo]

i have had 3 urine infection in last 5 months this one seem so much worse back pain abdominal pain, slight fever, constantly going to toilet n can hardly do anything at times, also got so many other symptoms going on just now at same time,,

[Natura]

Mojo....I have had the same problems with constant UTIs . I told the doctor I am not going on antibiotics 24/7. So I took it upon my self to take care of. I take a cranberry supplement every day, with a lot of water they say. If I have a particularly tough time still, I drink dandelion leaf tea which is a diuretic. The combination seems to be keeping me from getting a kidney infection ( which is prob why u r getting back pain and fever). I have some scarring on my kidneys from constant UTIs . Good news is my kidney doctor said it's not that bad. The kidney will work harder in other areas and recover. Very cool about the body, we have the potential to heal. Take care!

[mojo in reply to Natura]

Hi thanx Natura for ur reply, I have bn drinking loads of water for last 4 months as i cant drinktea or coffee now either dure to gaestrion probs, i do drink cranberry juice too, i did have the dandelion tee well one box of it, i will try the suppliments tomoz too but need to get it sorted now n hopefully if i keep up the suppliments n that it may get better , thanx again, u takecare too,,

[concord1 in reply to mojo]

camomile tea my fella has ckd stage 3/4 had infection 18 months nothing worked doctors were baffled tried camomile tea gone no infection on next visit to hospital well worth a try before bed time xx

[luppychick]

I had a recurring UTI for 15 mths , two weeks ago I was hospitalised with a kidney infection also having diabetes has made the infection twice as bad. Having lupus has slowed my recovery I have no choice but to stay on antibiotics for the rest of my life. But the body gets used to these drugs and they don't work any more. I would stay on top of that UTI and have your urine tested often so that if it does travel to your kidneys you can get treated before the pain and suffering starts.

Healing hugs mojo

Luppychick x

[mojo in reply to luppychick]

Awe thanx luppychick, this is something i hadnt ever suffered from over last 20 yrs of having sle,, but the last 5 months hav been bad, they are so painfull and this is the first i hav dad sever back pain n some fever too,

i will defo keep on top of it thanx again

Hugs to you also

mojo,,,x

[Natura in reply to luppychick]

Luppychick....I am so sorry...I understand what u r saying.my dr said i prob had a UTI when I was meeting him to talk about lupus being positive...I am amazed he didn't put me on anti biotics. This was weeks ago...I am fortunate in that it was slight enough for me to beat with cranberry pills. I also just read somewhere that garlic and onions are a natural anti biotic. Don't know if this is true, but I do eat a lot of onions and garlic. Maybe I have an infection still. I watch for the back pain. I don't have a fever, so there shouldn't be an infection. I also read peppermint is anti bacterial. I was drinking a tea with mint, ginger and lemon. Who knows. Maybe I was just lucky this time. I did not know u could be on anti biotics constantly. Someone wrote bee propolis natural anti biotic. Hope u r feeling better!

[sollyn]

I have had hundreds of uti and the best thing I have found is waterfall d mannose, parsley tea and also refusing to go for a wee as the more you go the more it hurts and gets inflamed.

But it is the worst thing ever! I get headache stomach problems and deep depression I am just recovering now and hope it is gone for good!

I hope you all get well.

[Natura in reply to sollyn]

Sollyn....cool info....did not know about d mannose...sometimes I feel I need something stronger than cranberry. And by the way, the only cranberry juice that really works for me is the real straight cranberry, not watered down and sugary cranberry juice kind. I couldn't stand the bitterness of it and started to take the supplement daily. Hope u r feeling better...I have a lot of stomach, headache and depression problems too. I sympathize ....

[artemis5]

Hi there, try D mannose supplement. It stops binding of bacteria to uti walls, essentially it's the ingredient you find in cranberries just purified and more potent. From herbs you can also try nettle and salvia both antibacterial. It would be worth to check which bacteria are causing your problems. Sometimes instead of ordinary E.Coli you might be getting shedding from other sides of infection (e.g tonsils) or some rather exotic bugs that need to be treated with antibiotics for prelim fed times. In any case, drinking a lot is essential as it flushed bugs out of your system and decreases acidity of your urine so it does not irritate urine tract too much. Another thing you could try is concentrated oregano oil which is another potent antibacterial remedy but it tastes absolutely disgusting...

[EOLHPC]

Vvvv much feeling for you, Mojo

I recently went through several years of frequent, volcanic UTIs: wild, with crazy symptoms (vomitting, diarrhoea, fever argh) galloping in at super speed...my version of these infections was so severe it made my gp give me antiboitics to keep at home 'just in case'...cefalexine, cause earlier phases of UTIs when I was younger had made me resistant to several common antibiotics (I'm 60)

Who knows exactly why my UTIs have kind of settled down, but yes: I did start sticking to all the recommended anti UTI diet & supplements & lifestyle management (cranberry concentrate supplements daily, avoiding sugars, plenty of hydration, peeing before bursting etc etc) AND my gp sent me to NHS GYN physios who taught me full-on pelvic floor exercises...apparently the idea is that doing pelvic floor work seriously could help my urinary tract tissues & organs guard agent UTIs....well, who knows, but I do all this stuff conscientiously and no UTIs for over a year!

I do wonder if my lupus meds are also helping, though (hydroxy+amityp+myo+pred tapers as needed)....because my bad UTI phase happened in the first 18 months of this treatment, when my bod was gradually responding to these meds...

Take care - hope you sort this out soon.

[Natura in reply to EOLHPC]

Wow barnclown, didn't know about pelvic floor work....going to try and start doing that. See if it helps..cool!

[EOLHPC in reply to Natura]

I know: I was vvvv skeptical, but this particular new gp had done miracles for me, so I had to at least give this gyn physio a try on her recommendation. At that point, I'd been doing Pilates for years & thought I knew all about pelvic floor work....haha, boy was I wrong: the GYN physio said my pelvic floor was ok (I'd been unable to conceive due to DES birth defects, and of course pregnancy can figure in pelvic floor issues) but she could teach me to do much more than Pilates ever had. And she really did. I had several appts so she could monitor my progress. There was flippin homework. Quite a few years on, I'm still doing what that physio taught me, and the only UTI I've had since those sessions was during a lot of complicated GYN stuff due to a botched colposcopy for DES monitoring.

So, yes, i'd recommend women do all the lifestyle stuff for sure (you know I do that too: I'm certain that helps prevent UTIs too) but I'm convinced that the gyn physio is especially important during & after perimenopause. I'd also recommend replens md on a regular ongoing basis....a lifesaver for me especially cause i can't do HRT due to my DES status, but HRT gives me dreadful rashes anyway

[Natura in reply to EOLHPC]

Cool barnclown... I will look into. I have done pelvic exercises before, but never daily. There is a pilates workshop near here. I should try to sit in on one. I like pilates. I did it for awhile at home between children. Probably made it possible for me to have another child. Thanks for the insight...

[JanBad]

A quick question, can you use products containing cranberry when you take warfarin ?

I have been told cranberries are a big no no with warfarin, and have avoided everything containing them for many years.

Jan

[field]

Hi mojo, Have you tried cranberry juice, I get those kind of infections quite frequently and I find cranberry juice very good. I use the Asda one I find it has more cranberry in it than the ocean spry.

[Gillyg]

Ask for a 3month course it's the only thing that finally helped me after 2 years. Good luck.x

[Bonnie39]

Be careful with natural remedies eapecially if you are on warfarin. I have SLE and APS so am on lifelong warfarin. I have a severe UTI every month exactly a week before my period starts. Current one has seen me bleeding (visible and non visable) for six weeks noe. Becaus I know I am prone to hormonally driven attacks which usually make me feel well below par I got myself some tedting sticks so I know there is blood in my unrine even when I'm noy just peeing pure blood. Gp referred me under two week rule for cystoscopy and CT. Saw thrombotologist yesterday and she confirmed there are no largr indicators of damage so it is most likely lupus nephritis as this happens at a microscopic level.

I am currently awaiting the regerral she has ordered with a nephrologist and rheumatologist so I can start to get the sle treated. I have stage 2 CKD.