My 8 year old daughter was poorly a few months ago.
She couldn't walk because of severe pain in her hips. She suffered with terrible fatigue too.
She was admitted to hospital for two weeks and had lots of tests. She had an mri. That was clear. She had loads of blood taken. Some came back indicating swelling.
She was discharged without a diagnosis.
Life was very difficult with me being so poorly too.
At one point I was told that she was just copying me. I don't believe this. I know my own child.
Now, she is starting with the same problem again. She has gone from a happy athletic little girl to a pale, sore shadow of her former self.
I'm worried sick. I don't even want to take her back to the doctor. I feel let down by the medical profession.
She has already lost a whole term at school and I don't want that to happen again.
Has anyone else had similar problems?
So many doctors have told me that children can't get lupus. I know this isn't true.
My son has rheumatoid arthritis and was diagnosed when he was 15. Along with my lupus, surely it's possible that she has a similar issue?
Her sister, who is 13,has had hip and back problems since she was 7. I feel like the consultants don't listen to me. I feel invisible and struggle to find the energy to fight.
Thanks for reading, Louise xx