Hi, i had my sjrogens lip biopsey on tuesday and am still in bed recovering. I was v sick after anesthetic and got an anti sickness iv. I had an antibiotic iv too as i suffer from reocurring pericarditis. I have bad pain in my jaws and lip is still very swollen. I would love to hear from anybody out there who had a simar experience re lip biopsey. Im wondering if my pain is normal and trying to decide if i should rest more or return to work tomorrow. On day three of semolina as i hve an inch of stitches!! Looking forward to hearing from you. Take care x
Sjrogens lip biopsey: Hi, i had my sjrogens lip... - LUPUS UK
Sjrogens lip biopsey
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Ahhhh lollalettuce bless you hope you are feeling better soon. I remember feeling sorry for myself for days! I would have tomorrow off and go back to work on Monday. I work in a school so did stay off as bruising very bad and looked pretty scary!!! Have you tried a smoothy picks you up and fills you up. Please contact me if feel like need to talk x
Hi t3kao how are you? Hope you are having a nice weekend. Just thought id let u know im getting my results on friday and am nervous! Im only 35 and they have been trying to diagnose me for 15years.i have every test u can imagine from head to toe! do you ever have days where you wonder how it is possible to be on so much medication?! Anyway thats my little debate over! X
Dear Lollalettuce, I am quite good at the moment and have had quite busy weekend. Did my first Farmers Market as I make handmade bags and gifts, something I have learnt to do whilst being off of work for so long!!!!!! This was yesterday and hence have spent most of today either n bed or lounging around trying to recover!!!! Good luck on Friday do let me know how you get on. Oh I totally agree with the medication I sit and look at them all just before I take them! I did stop at christmas in protest really, but am still suffering as a result of that realise that unfortunately we do need to take them. Take care xxxxx
Thanks so much for writing back, it helps knowing im not the only one who is having a wobbley time after the test! I am suprised i am feeling so battered. I have had open heart surgery and the bruising in my lip feels sorer than my ticker did. Ill defo give a smoothie a go. Im defo expecting too loose a few pounds at my next weight watchers class! Take care x
Hi
May I ask do you have Hughes too? I ask because a lip biopsy was considered for me but quickly dismissed as having no practical point as, even though saliva and the blotting paper eye tests suggested I had drug induced sicca/ sjrorgens rather than primary, my treatment would be the same regardless of a positive lip biopsy or change in label. This was the advice of a Guys Sjrogens specialist. I have since gone on to Pilocarpine which is great during the day, but relatively little help at night or when I am horizontal. I do hope you feel better soon.