Virus or Lupus Flare??: Hi All Lupus Warriors, I... - LUPUS UK

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Virus or Lupus Flare??

Blessings101 profile image
6 Replies

Hi All Lupus Warriors,

I haven't posted in a while, it's been a crazy rollercoaster ride with lupus symptoms. I've been out of work so often that I have gone into negative sick leave, and now have to go into unpaid leave.

Since Tuesday I have been in severe pain with tummy cramps, nausea, diarrhea, fever and body aches. I got some meds from the pharmacy to help with the diarrhea and tummy spasms, but this does not seem to help. I'm unable to sleep as I have to continuously run to the loo. Even drinking water causes tummy pain. I feel so weak and have a pounding headache.

I am uncertain if this is a some type of virus of tummy flu or a lupus flare. Anyone else ever experience this? Is it worthwhile going to the hospital?

Love and Blessings to All.

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Blessings101
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6 Replies
KayHimm profile image
KayHimm

You sound really miserable. Actually, with the fever, weakness and headache, it may be safer to just go to the A & E. The big worry is dehydration.

Is there a number you can call to speak to a nurse to at least advice you?

It is probably hard to know whether you are having a flare. But if you are on immunosuppressants an infection is more serious.

Very sorry you are going through this. But best to be safe and get to the hospital.

Xk

CecilyParsley profile image
CecilyParsley

Hi thereI really don’t know the answer but just wanted to say that I am so sorry that you feel so awful and hope that you get some relief soon. Big Cwtches xx

Jmiller623 profile image
Jmiller623

Hi Blessings! I hope things have settled down over the last day. I am so sorry you are feeling so unwell. I have had moments like this and told my GI doc right away. He made me get an abdominal U/S to rule out both gallbladder and kidney stones. He also checked pancreas function. Other than a high white blood cell count, nothing impressive turned up so we attributed to lupus. I think with a fever, I’d be more concerned.

Is there any way to contact your GP and get testing ordered? If not, I agree with KayHimm, see a doc ASAP if you can. It’s no way to live and you need water and nutrients.

miccika1 profile image
miccika1

You need to get properly examined by a doctor. The symptoms you describe sound serious

777dove profile image
777dove

Hello, I had a very serious bout with the same symptoms many years ago (1989). I ended up in the hospital on IV for hydration, pain control, and testing. After 8 days of testing, they finally found an elevated eosinophil count. Diagnosis was Eosiniphillic Gastroenteritis which at the time was VERY rare. Not so much anymore--not sure why. They put me on massive steroids for a couple of months. This disease has never returned as such, but I have several autoimmune disorders.

If you stop drinking water because it hurts, you must get fluids! Go to Doctor!!!

I wish that on NO ONE. I am sorry you are suffering. Get well soon.

Tracy

Melbourne-Girl profile image
Melbourne-Girl

Blessings101, I think you should definitely go to hospital. Normally anti diarrhoea and nausea things should work on you.

Good luck and keep us in the loop with how you are getting on, thinking of you and hoping for a good outcome for you.

M-G xxx

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