My rheumatologists, gp & pain consultant keep asking me if I'm experiencing muscle wastage. I tell them: well, yes, but isn't some degree of muscle wastage "normal" for my age (60) and diagnoses: infant onset SLE, global hypermobility (ligamentous laxity), tendon tightening, clinically diagnosed Ehlers Danlos etc etc etc...with vasculitis being watchfully waited for
my gp thinks muscle wastage has been already affecting my feet/ankles/hands....but, hey, even if i'm not v strong, I can still "use" these bits of me....although I can't do much cause, I'm told, of progressive degeneration due to 58 yrs without systemic lupus treatment....cause my early life diagnoses got lost when i moved to the uk where no drs connected the dots of my many medical crises over the years .... But, ok, i manage a bit of carefully rationed walking, basic household chores, physio exercise regimes etc...all so much easier now I'm on the right meds
So, I'm wondering if anyone on forum can give me some pointers about what muscle wastage symptoms actually are - what I need to be looking out for, AND why drs of a patient with my profile would be expecting me to show muscle wastage. Also, how is this treated (sle finally rediagnosed 2.5 yrs go: treatment began with plaquenil, + amitryptiline + pred tapers + now on myco etc)?