Morning all, I was just wondering whether after being ill for so long any of you have been able to resume a normal life after being on medication for a while.
I haven't been able to work for 12 years and I was only diagnosed 2 years ago with lupus, aps, sjogrens and raynauds. I have had a carer for the past 4 years and my level of independence is still decreasing. I can't manage all of my house work, i can no longer drive, i can no longer go out alone, i can only manage to walk about 300m and I am normally in bed by 8pm on a good day. On a bad day I can just shuffle to the toilet with support, I can't shower, hardly eat or drink and just "die quietly" on the settee.
I still live in hope that once my medication is sorted , now on MMF, Hydro, mepacrine and steroids, that I will be able to manage with out a carer and that I will get my legs and my independence back.
Unfortunately though, I haven't found a "good" story like that on this site yet, but I am hoping someone is going to change that