Hi all, I haven't been on the site much as I've been finding this chemo combo quite tough, had lots of side effects with fatigue, rashes, mouth ulcers etc. I finally received a copy of my CT report and Basicall my main tumour has reduced slightly but the lymph nodes have increased slightly, so I'm going to say it's stable just now.
I am due to have my 4th and final round of chemo tomorrow but yet again my white blood count is down at 0.7 and I need it up to a minimum of 1.5 so it's of go hospital first thing tomorrow for another blood test to see if it's ok to go ahead with treatment tomorrow afternoon.
I've also read that the Scottish nhs has just given the go ahead for Nintedanib, an immunotherapy drug, to be used to treat some patients. I believe that NICE may follow suit in May. Here is a link
Hi Knic thanks for your support. My first cancer was squamous and I had Cistaplatin and Vinorolbene for that. This time around it's a carcinoma type classed as NSCLC but it has SCLC similarities so I'm being treated with Carboplatin and Etoposide. I've just phoned and my white cell count has gone up to 1.8 so it's off to enjoy the delights of chemo on this nice sunny day.
Hi rab and sorry to hear you're struggling with chemo. Nasty stuff! Hope you manage to get your last one today. I did see nintedanib was approved in Scotland. My next cheom would be docetaxel with nintedanib as although its not approved here my oncologist had enquired and he could get it from the drug company on compassionate grounds. There are a few here on it with Docetaxel. hope you get your chemo finished and recover to enjoy the summer.
Sorry to hear that you are feeling rough with the chemotherapy, I did too but did start to feel a lot better when I came off it after the fourth session.
Hi Stewart, hope you are still keeping well? Yes my white cell count did get up to 150 by Wednesday morning so chemo went ahead in the afternoon. I'm finding it tougher going than the combination I had with my first cancer, in fact I've been fatigued and in bed most of today. I'm due another CT scan in a few weeks and an appointment with my oncologist on the 23rd May so let's see what the prognosis is then.
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a little update.
Update on mums tumour growth NSCLC 
Chemotherapy Cycle Two Weeks 2 and 3 
