Hi all, I haven't been on the site much as I've been finding this chemo combo quite tough, had lots of side effects with fatigue, rashes, mouth ulcers etc. I finally received a copy of my CT report and Basicall my main tumour has reduced slightly but the lymph nodes have increased slightly, so I'm going to say it's stable just now.
I am due to have my 4th and final round of chemo tomorrow but yet again my white blood count is down at 0.7 and I need it up to a minimum of 1.5 so it's of go hospital first thing tomorrow for another blood test to see if it's ok to go ahead with treatment tomorrow afternoon.
I've also read that the Scottish nhs has just given the go ahead for Nintedanib, an immunotherapy drug, to be used to treat some patients. I believe that NICE may follow suit in May. Here is a link
Wishing everyone the best.