Hi, my daughter was diagnosed in October last year with a platelet count of 3 and is currently on 16, 4 months later. She hasn't had any medication as yet, though received a platelet transfusion at Christmas for heavy menstural bleeding, which is only just under control nowthat she is taking an oral contraceptive pill. I'm really worried for her, my positive full on little girl who has always loved and embraced life has been knocked for six by this, and I don't know where we should go from here. Can anyone give me an idea if I should be looking for a second opinion, and if so where to begin. Should we be looking at giving her a dose of steroids or the IVg treatment, which her friend was given recently, who now has a count of 186.
I'm really quite scared for her, I've always remained positive and hoped this would be short term, but now Im not so sure. At what stage will the doctors do further investigative tests, and what may they test for? I understand a bone marrow biopsy is usually done at six months, is this painful?
I'd be really pleased to hear from anyone who can offer me any information at all, we feel so in the dark, I think we really need some direction, some plan, some idea but she sees the consultant every 6 weeks for a few minutes and we just dont seem to be getting anywhere.