Hi my daughter was diagnosed in 2011 with itp at age 8. She had a platelet count of between 4-8 over the next year and a half and had no treatment. She had occasional bleeding from gums but apart from that was healthy. Then this year unfortunately she took a turn for the worse. She was at home feeling sick where she then vomited blood by the time we were going to the hospital she collapsed an had a fit. The ambulance came and she was rushed in. After what sempt forever the doctor came an told me she was being rushed to a different hospital for emergency surgery because she had had a major bleed on her brain. Two days later she needed to have her skull cap removed due to pressure. After a week she had another MRI scan and we were told she was basically brain dead and hiw she was laid in bed asleep was pretty much how she would be. She spent 5 months in hospital having intensive treatment a cranio plasty fitted from where her skull had been removed. She also had a spleenectomy which initially showed no effect. She then started on romiplostin. Her recovery has been amazing shes now back at home she has right sided weakness and weak legs ands mobilises in a wheelchair some short term memory problems but all in all is doing fantastic. If anyone has anyone questions about itp please feel free to ask and il do my very best to help.
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