My 4yo daughter was diagnosed with ITP when he platelet count was 12 back in Feb; it slowly went up to 28 over the 3 weeks that followed, but has since slipped and her latest reading 1 week ago was 4.
An appointment finally came through to see a blood specialist at Addenbrookes, but it's not for 2 months. We were previously advised that she couldn't attend nursery if her count was below 20, but after complaining about the delayed appointment the doctor on call told us my daughter would be fine to go to nursery, and start school in september and go about her daily life as if her count isn't low, it's worth mentioning she is now also anemic.
Has anyone else had a problem like this? We feel stuck, and as though nobody can really give any information on how to look after her etc...