It is now thought that only blood type “O” individuals have ITP and/or gluten intolerance due to not having enzymes in their stomach to digest gluten. This means undigested gluten becomes a poison or toxic substance in the body of every blood type “O” individual that destroys their platelets. Therefore, the only treatment for ITP, gluten intolerance and/or Celiac Disease that works, is to avoid all gluten foods (wheat, rye, oatmeal and barley) like the plague. It takes a year after stopping all intake of gluten for the platelets to return to the normal quantity of 400,000 - 600,000 platelets. However, you will see your platelets gradually increasing throughout the year until they are back to normal. But you have to strictly avoid all gluten grains for the rest of your life. This means no bread, pasta, pizza, cakes, pies, cereals, cookies, crackers, ketchup and any foods that use wheat in their product as a thickener, unless they are “gluten-free.” Reading labels is a must. There are many “gluten-free” breads and other foods you can substitute. The enzymes in fresh pineapple have helped many ITP patients speed up the removal of gluten from their body. It would be helpful to science to determine if everyone with ITP on this website is a blood type “O”. If you don’t know your blood type, ask your doctor to do the simple test to find that out. If you are a blood type “O” can you respond to this message with a “Yes”? Thank you from Dr. Carlson.
Blood type “O” and ITP and Gluten Int... - ITP Support Assoc...
Blood type “O” and ITP and Gluten Intolerance
I am O negative. Will definitely give it a try. Thsnks for this information..
I have had ITP for the last 5 years and am blood type A positive so that’s this theory debunked.
Lifeafter ITP,
Did you know we all have two blood types? We get one from our mother and one from our father.
If you are blood type “A” you are either a an AA or an AO=Type A.
If you are a blood type B you are either a BB or BO=Type B.
if you are blood type O you are an OO=type O from both parents.
If you are blood type AB you receive an A from one parent and B from the other parent.
Therefore you are probably not an AA but an AO Blood type which can account for the ITP since half of your blood type is type O. This can predispose you to having a genetic deficiency of gluten digesting enzymes that contributes to ITP.
Other factors that can be a precursor to low platelets is consuming garlic, onions, ginger, and vitamins E capsules. All of these foods are blood thinners. They have Heparin and Coumadin-like effects.
Therefore on a gluten-free diet also avoid these foods which help prevent blood-filled bruises from popping out on your legs.
Hope this helps.
ITP for 5 years, Blood Type A neg. I think your suggested theory may require a bit more scientific research don’t you!!
The post was about gluten intolerance, AND having blood type O, being the cause of low platelets.
The replies mention blood type but not if they are gluten intolerant.
Obviously there are many reasons for ITP but if there is a coeliac connection, as suggested in this post, then platelet count improvements could be seen with a change in diet.
Any coeliacs out there who know their blood type please reply😁
Just a couple of things about this theory. Firstly I am O rhesus negative.
The post says that the platelet count should be - 400,000 to 600,00 I’ve always been led to believe it was 150,000 to 500,000 . When did this change?
If only O negative people respond where is the scientific base for the research?
I didn’t find this post very well thought out and giving (almost scare tactic) advice about becoming gluten free a little premature. Becoming gluten free is a massive life-style change and needs careful
planning. Do the researchers not need to know other basic points to aid their research?
Blood group, whether a person is already following a gluten free/other dietary lifestyle. Age, length of ITP etc.
Interesting theory but a bit flawed On the research front at the moment.
My ITP was caused by being pregnant, and I am not gluten intolerant. I am not going to change my diet on the advice of some random on the internet who doesn't get the facts right about the normal platelet levels.
I think you need to do some research about what a normal range for platelets is, as 400,000 -600,000 is not normal and would be in the range for thrombocytosis and be cause for alarm due to blood clots forming.
Before you start asking for information, what kind of Doctor are you? Where do you work? Where did you qualify? Who is funding this research? Where is it taking place? What papers can be accessed about it? Who says it would be 'helpful to science' to know our blood types?
Don't you think the doctors that we see in hospitals would already have flagged this up, if it were the case?
Yes
Yes! Thank you.
I am O positive. My entire family mom, dad , husband are O positive. They have not had ITP although wheat is part of their daily diet
Yes, O positive
Everyone has a gluten intolerance it causes inflammation in everyone , some a lot more than others .
I would suggest a gluten free diet for everyone you won’t feel as bloated and it’s so much easier on stomach and joints
Where did you fine this information? I’m O + I have ITP but I’m not gluten intolerant. My ITP developed after a massive surgical infection requiring triple IV antibiotics for six days which triggered my immune system to attack and destroy my platelets. Please send me the literature on your theory. Be well Georgia
Is this a wind up? Are you really suggesting that you are a research doctor and all those with ITP that you have encountered so far in your research have type O blood?
I have had ITP for 30 years, am A+ and not gluten intolerant. As pointed out in another post. ITP is a diagnosis of exclusion. My hematologist and I agree that there could be 2 or even several disease/conditions which fall in the category of ITP. This leaves room for a lot of anecdotal evidence which applies to only a few people and should not be applied broadly. Put plainly, gluten free diet may work for a very few ITP patients but not likely for a large portion of the patients. O is a relatively rare blood type which does not represent a large portion of ITP patients.