I am posting this in both the Addison’s forum and the Hugh’s Syndrome forum.
I am just wondering if anyone out there is in the same situation. My husband was diagnosed with Antiphospholipid syndrome 3 years ago after a DVT with no apparent reason. It took 6 months to get the diagnosis due to having to wait for the second blood test to confirm it.
Last year he had surgery and 2 weeks later ended up in Hospital in an Addison’s Crisis. The Rheumatologist and the Endocrinologist can’t agree on why, or how, but they both agree that he has had an adrenal haemorrhage and now has not adrenal function.
The general consensus is that he should have died at the time so we should just be grateful he is alive. I am now wondering if anyone else out there has got Hugh’s AND Addison’s. We have been told it is “very rare” and would like to know HOW rare.
If any of you are on other Addison’s or Hugh’s forums, please post this there as well so I can get an idea if there is anyone, and if so, how many.