As some of you know, Derek had CAPS last year and now has Adrenal Insufficiency.
We have been tracking his BP for the last month to see if there is any indication when he is starting to show signs of going into Adrenal Crisis.
The problem is we have noticed that his BP is all over the place. It can be as low as 113/80 or as high as 156/94 in the same day. His Heart Rate is also all over the place. It can go up by 40-60 bpm on standing.
We don't seem to be able to track any reason for this, except that it was most stable when he was on holiday and doing nothing.
We are not sure if it is related to his APS, the fact he now maintains an INR of 3-3.5, or that he is just suffering from his Addison's because of lack of Stress hormones.
I know Welshexile has also suffered from these two conditions but I haven't seen her around for a while. Has anyone else had experience of these two primary conditions side by side?
They are both considered Primary because they are both independent of each other and so either can take the lead in knocking him down. Before his CAPS he was on Warfarin, but had no symptoms after his first DVT.
Thanks for your help.