Hi Kerstin! Thx for ur response! I must clear something I've been hiding since I've seen that NYC SPECIALIST IN APD ! This particular Doctor, He said some things to me me that not only scared the hell out of me, but from what I know and from what Dr. Graham Hughes just wrote in his blog, I know now that I shall never go see him again! He may be very smart in research, but I test doctors with my knowledge and he failed a major test that I knew to be true! Dr. Hughes just completely confirmed that for me! He may be a great researcher and help many, but he disagrees with the man who discovered the disease! I went to a very good private hospital in Long Island, NY due to the fact that I had severe tummy pain that no painkiller got rid of! I was throwing up and slight diareah! I thought a flu virus, but lasted too long! Three doctors saw me and my heart rate fell to 40, I have a very fast heart rate and take a medication to slow it down! That day I cud take no meds cuz I couldn't keep it down! Thank God! I told a 3 docs what I had and they looked at me like I had two heads! I told one of them Shud I spell it for u so u can look it up! They gave me 5 mg of morphine that did hardly anything and let me lay there for 5 hours screaming in pain! I never screamed once during labor and like my sister have an extremely high tolerance to pain! The nurse I had screamed at me for crying out in pain that I was bothering the other patients! Up hers! Wen the next nurse came in I got 2 more mg of morphene and kindness! Then a CAT scan w/o contrast as I'm severely allergic to it! They told me to go home I had stomach adhesions from 6 previous stomach operations! I had no one there for me! Went in an ambulance and came home in a cab! How sad was that! Everyone has their jobs and their own lives that are soooooo much more important than giving back to a person like me who has been at the side of everyone who has ever been sick! Never again will I be there for anyone! I'm so very on my own with all this! I went to a new RHEUMOTOLOGIST that diagnosed me 20 years ago with fibromyalgia! He also failed the test, but I like him and will show him and the other doctor, Dr. Hughes blog to prove them wrong! Omg what do I have to do come to England??? I'm ready to throw in the towel! Thank you Kerstin and Mary Dave Not so fab & all who respond to my helpless issues here in America! Any suggestions! I've been to the top and he not only disagrees with Dr. Hughrs, but is an Acadamien and brilliant professor who wants my family's med records so he can research and maybe get an award and do another conference with another number! I'm human being who feels! How dare they disagree with Dr. Hughes! Not my local Hemotologist, but he needs to c this blog about me being anti coagulated too! I'm mad as hell and fed up with all of these doctors who don't always get the condition. Get with the program America! Australia seems amazing from what I've read!!! God Bless You All
Last edited by MaryF
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