Hi to all,
I'm the group leader for the Staffordshire & Derbyshire area & I am thinking of arranging a meeting in Staffordshire in April for all Hughes to come to, chat about symptoms, any ideas they may have for events, fund raising ideas, raising awareness or just to chat about each other in general!
Would be nice to get a few of us together to talk & support each other, I've sent this to all that 'are in my area' but if others can make it you know you are all welcome!
let me know if you would like to join us & I'll get back to you with the place & day as soon as possible,
I will let you know if my piece in the local paper goes in too to raise awareness in the Burton area plus I have contacted several local radio stations & left flyers & my websites cards everywhere I go!! they will be put at the gig I'm at on Sat' too which is by the way in Ross on Wye if theres anyone in that area that would like to meet me.....come to the gig ( which I'll tell you where! when Hubby confirms it! ) & I'll be ( as usual ) the nutty band photographer!!! or if you dont want to come to the gig I could say a quick hi before the band start! : )