Hi all, I have just launched a face book page which as well as shows my photography on it............. it also has information & links to Hughes Syndrome / Foundation on it too
I wanted to start one for my photography ready for when I hopefully start my own business next year......so I thought why not kill two birds with one stone! .........as they say!!!! ( no not you Honey & Mumble!! )
So for any of you who may have facebook, type in : 'Sue's Art & Photography supports Hughes Syndrome' in facebook & hopefully it will take you to my page.
In there I will be putting any interviews / stalls / meetings / write up's / etc concerning Hughes / ...........
I'm trying to think of every way possible to keep this well circulated....so I'll try the flow of technology & facebook now as well!!!
Hugs to you all....I said I was still here!!......I'm on my way back now hopefully stronger than ever ........yes I'm still chasing MP's!!!
xxxx
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Suzypawz
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One day at a time hon, I'm just so tired, chest infection back, inr was up above 5 now back down at 2, no wonder ive been talking gibberish for days, oh well nothing new there hey??
Hope you're taking little steps and staying away from that fence panel with your name on it!!
yes we are you make yourself ok hun, yes I'm staying away from fence panels..........got a lovely bi bruise on my leg but dont know where from this time?? wasn't a fence panel anyway!!
I'll try to give you a bell tomorrow if your available?
Should be about in the afternoon, got lipid clinic at burton hospital in the morning. Annual cholesterol check with the mad professor!! He's lovely but so eccentric he makes my dad seem sane!! Ooops sorry dad!!
The prof at Burton is the one who says my bloods and symptoms add up to lupus too, he likes to ask a million questions and I struggle to keep up with him, taking some info on Hughes with me, might keep him quiet for a bit! Lol.
I can't find you either, you sure the page is public.Can you send me an invite Tracy Jallow Hutchison Im the only one I think.Anyone else that would like to be friends just send me an invite and say you are from here.
Thank you glitterwitch!! I'll invite anyone that leaves me their facebook name....you can do it by p.m. if you prefer let me know if you can get in! I'm there as a 'guest' too....you'll recognise 'my eye' !!!!!
Suzy great page there is also two other face book pages one is the hsf page and another is a group set up which was connected to the aplsuk but joined to this when that site merged cannot find links but will put them up tomorrow.
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