Hi All this Blog was started by Suzypaws but has made its way in the back but a number of you found it useful so i have posted the orginal message from suzy and the link so you can start a new post here as well assee what people wrote before.
Here is a post I put on the 'Hughes (APS) support posts & soooo many people put their answers on it! which ended up looking like a chinese menu!!
It was interesting to see how many of us actually have a lot of the same things even though they havn't been linked to Hughes.
Hi guys, don't know if any of this has been asked before, but i just wondered which of these any body else gets or has...maybe some of you.......like you Garry wont get some of these though !!
1-frequent migraines....doc' told me they would go once taking warfarin.
2-cysts on ovaries.....I've had 20,11 on one side 9 on other.
3-right knee giving way when walking, drop things with right hand.
4-disc degenerative disorder.
5-bladder & kidney infections.
6-memory blocks things out & you can't get some things back(big stuff too)
7-breast glands painful,on & off all the time. (doesn't matter what date.)
8-moody & tearful.(doesn't matter what date.)
9-words or letters muddled up whe speaking.... eg:criminal will come out crinimal, car park will come out par cark!
10-dry mouth plus dry eyes (have trouble taking out contacts)
11-jaw cracks...big time !
12-gall bladder stones (had my gall bladder removed year before last.)
13-loss of appetite then binge eat.
14-get tired very easy, usually at an inconvenient time not bed time !
15-kidney stones...i peed blood for about 5 days then nearly passed out in pain on last day last year...they think it was a kidney stone being passed.
16-abnormal bone growth..bunion & a few bones growing strangely!
17-having an extremely good immune system as a child(eg.never had colds/chicken pox) then it just completly went and got everything out there.(maybe brought on by the stress of when my dad died?)
18-heart missing a beat(told it was quite common though.)
19-now have dust allergies, allergic to some fish, hay fever etc.
20-dizzy spells or labrynthitis, Menieres disease.
it would be interesting to know if theres a few of you that have most of these symptoms,you could just write the no's. down of the 1's you get, it'll probably look like a chinese meal being ordered but it would be quicker !!
think of it as a type of questionaire thanks for your time xx
Some info' on various things to do with Hughes disorder are explained on my blog/website, feel free to take a look at them on there if it helps, things like Fibromyalgia, Meniere's disease, the plaquinil drug and Hughes itself, hope this helps