I'm a noob and not very up to speed with Hughes so please bear with me!
I had a DVT in my right leg in 2004; this was put down to lots of long haul flights and I had a brief course of warfarin and was then taken off it.
I was on and off warfarin for a few years, I had several borderline, negative and 'definitely positive' lupus anticoagulant results but my specialist thought my very poorly thyroid was probably the reason behind my rather erratic test results.
After a few years I was tested again and after more rather confusing results I finally got diagnosed with Hughes and was put back onto warfarin. I was then taken off them by my new consultant as she also thought it could be my thyroid and not actually Hughes.
I recently had another positive test and now my consultant wants to start me back on anticoagulants next week. I've had a pain in my lower right leg for the last few days and although its nowhere near as painful as when I had my DVT it is enough to worry me. I had a blood test last week and the nurse couldn't get any blood out of me at all - she laughed and commented on how thick my blood must be. Eek! My period is also nearly 2 weeks late (which never happens) but I have had 2 negative pregnancy tests.
If I did have a clot would something show up in the lupus anticoagulant test? A d-dimer wasn't done although my consultant did request one. I'm sorry if that's a really dense question but I have a very foggy head and flu so I'm not really firing on all cylinders at the moment. I really do need to try and understand this condition and its very, very complicated tests!
Thankyou for reading my rather complicated post!