Itchy rash all over my body - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Itchy rash all over my body

Toshiba666 profile image
6 Replies

Hi can any one tell me what I might have. I have a itchy rash all over my body and it itches like mad, especially on my neck ;arms and face . Thanks for your help.

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Toshiba666 profile image
Toshiba666
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6 Replies
Wittycjt profile image
Wittycjt

Toshiba666?

Lure2 profile image
Lure2 in reply toWittycjt

Something wrong? What do you mean?

Kerstin

share-a profile image
share-a

That itchiness all over is exactly what is happening to me and getting worse. No rash. Just itching. Drives me nuts! I donated blood and got a letter saying they didn't want any more of my blood, and that I have HTLV I and II. My doctor, who is 80, said they don't know anything about it, and there is nothing to do about it, but on line it lists 10 symptoms of it, of which I have eight, and one was this itching.

It also said, quote: All patients with HTLV-1 or HTLV-2 infection should be counseled extensively on the lifelong implications of their infection (see Patient Education). [43, 44] The tx of adult T-cell leukemia (ATL) is the same regardless of the presence or absence of HTLV infection. Scary. I've been trying to find a doctor for the six months that I've know. There are two in MD, but I'm in CA.

Lure2 profile image
Lure2 in reply toshare-a

Hi share-a;

We spoke first 3 years ago and then 2 years ago and you and I are the same age - 73 years old. I live in Stockholm/Sweden.

How did it go for you to find an APS-Specialist as we suggested? Did you do those blood-tests wanted?

Where are you situated? What do you mean with CA?

You must get a referral from your GP to someone who can do the blood-tests required for your symptoms. i do not know what HTLV-1 or HTLV-2 is but I think you spoke of RA and Lupus also 2 - 3 years ago?

Best wishes from Kerstin in Stockholm

share-a profile image
share-a

No rash. Just itching.

MaryF profile image
MaryFAdministrator

Agreed. and of course of forum is monitored due to our known two trolls and their locations! MaryF

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