Hi I've had APLS about 3 years and have been on warfarin for 2 years.last year I flew about 3 1/2 hours on holiday and when I landed I had a lacy rash on calf. Now lacy rash is very large ,purple and very painful to touch. Has anyone had any history with this type of rash. Dr is not interested and will not discuss anything to do with APLS. Ty
Lacy rash: Hi I've had APLS about... - Hughes Syndrome A...
Lacy rash
Can you post a pic? Generally the sort of rash you describe isn't itchy or painful. Is the leg swollen? Kind of sounds like a DVT. Really needs medical attention,
I am confused.
Do you have a painful rash now? If so you need to go to a doctor immediately. You can’t assume a painful rash is APS.
Hiya, if you r leg really hurts I would go to hospital, or phone your specialist? Do you have one? A lot of people have Livedo Reticularis, but if your leg is painful that is of concern. MaryF
My consultant when he saw mine, said that it's a APS rash they call it a corned beef rash.
Has a doctor prescribed a treatment?
I'd definitely go and get it looked at
Ty all,went to Dr today, am having a ultrasound and am being referred to a specialist
This is great news you are being referred. It’s possible you are having clotting to the superficial veins, which is sometimes referred to a thrombophlebitis.
It can be a sign , in APS patients, that your anticoagulant needs a closer look.
It’s possible that you have livedo in tandem.
It’s possible that you have a DVT, thrombophlebitis, ( due to reflux- smaller veins/ vessels trying to carry the load/ do a “work around” if you happen to have a DVT ) and livedo- all interconnected as a single event- so your inr needs to really be evaluated.