Lacy rash: Hi I've had APLS about... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Lacy rash

MackinLake profile image
11 Replies

Hi I've had APLS about 3 years and have been on warfarin for 2 years.last year I flew about 3 1/2 hours on holiday and when I landed I had a lacy rash on calf. Now lacy rash is very large ,purple and very painful to touch. Has anyone had any history with this type of rash. Dr is not interested and will not discuss anything to do with APLS. Ty

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MackinLake profile image
MackinLake
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11 Replies
Ozchick profile image
Ozchick

Can you post a pic? Generally the sort of rash you describe isn't itchy or painful. Is the leg swollen? Kind of sounds like a DVT. Really needs medical attention,

MackinLake profile image
MackinLake in reply to Ozchick

This is it today ,not itchy just painful

Rash
lupus-support1 profile image
lupus-support1Administrator in reply to MackinLake

No one can make a diagnosis via a photograph. You need to go to your doctor or hospital. Let us know how you get on.

lupus-support1 profile image
lupus-support1Administrator

I am confused.

Do you have a painful rash now? If so you need to go to a doctor immediately. You can’t assume a painful rash is APS.

MaryF profile image
MaryFAdministrator

Hiya, if you r leg really hurts I would go to hospital, or phone your specialist? Do you have one? A lot of people have Livedo Reticularis, but if your leg is painful that is of concern. MaryF

MackinLake profile image
MackinLake in reply to MaryF

Ty

Carole-J profile image
Carole-J

My consultant when he saw mine, said that it's a APS rash they call it a corned beef rash.

GinaD profile image
GinaD

Has a doctor prescribed a treatment?

Dot69 profile image
Dot69

I'd definitely go and get it looked at

MackinLake profile image
MackinLake

Ty all,went to Dr today, am having a ultrasound and am being referred to a specialist

KellyInTexas profile image
KellyInTexasAdministrator

This is great news you are being referred. It’s possible you are having clotting to the superficial veins, which is sometimes referred to a thrombophlebitis.

It can be a sign , in APS patients, that your anticoagulant needs a closer look.

It’s possible that you have livedo in tandem.

It’s possible that you have a DVT, thrombophlebitis, ( due to reflux- smaller veins/ vessels trying to carry the load/ do a “work around” if you happen to have a DVT ) and livedo- all interconnected as a single event- so your inr needs to really be evaluated.

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