Gluten free foods...anyone experience... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,411 members10,622 posts

Gluten free foods...anyone experienced feeling better on a gluten free diet?

Rockhopper profile image
10 Replies

We've recently tried baking etc with gluten free flours and after hearing stories from some patients with SLE and Hughes Syndrome (like myself), I was wondering whether to cut out all wheat and gluten products? Has anyone tried a gluten free diet and if so, what were the effects ( positive & negative) please?

Many thanks.

Written by
Rockhopper profile image
Rockhopper
To view profiles and participate in discussions please or .
Read more about...
10 Replies
tassie profile image
tassie

I've been gluten free since May last year and feel a lot better. A lot of the fog has lifted, feel less depressed, have lost a lot of weight. Originally I had less headaches for a while but they returned. Less abdominal issues. I'll never go back to eating gluten. I only need a crumb or less and I react now.

MaryF profile image
MaryFAdministrator

Hi, I have been strictly so for two years now. What it does is if you take the time to do it carefully and completely avoid it, is it takes a layer of irritation out of the equation. I find it simple and would never go back to gluten. I have no bloating any more, less brain fog, and less soreness in my joints and I stopped my allergy which was extreme sneezing lasting up to 2-3 days, by 85 percent I would say! Most people who say it makes no difference normally give up too early, (as sometimes you feel worse at the beginning), or they think it does not matter to have a bit. I am afraid it is a case of all or nothing with gluten. I also no longer get stomach upsets on a regular basis. MaryF

MrsMouseSJ profile image
MrsMouseSJ

It's gluten free for me! Definitely worth doing and sticking to, on the basis of my own experience.

Skyllark profile image
Skyllark

Yes and also lactose free too!

GinaD profile image
GinaD

I went gluten free and not only did my mild but escalating tummy problems vanish, all my APS blood work went, within 6 months, from positive and strongly positive, to negative or borderline positive. AND I was, for the first time since I was 4 years or, no longer anemic!

jetjetjet profile image
jetjetjet in reply toGinaD

Hi Buddy -- sorry i have so lax -- cal when you can --- Casy & i

GinaD profile image
GinaD in reply tojetjetjet

It's nap time now. I'll call in about an hour if that's OK.

Gina

Jillymo profile image
Jillymo

I feel so much better without gluten in my diet, i blow up like a balloon if i consume any form of gluten & immediately get a fuzzy head.

The best bread i have found is genius, i find if i can buy it quitec fresh & freeze it i can just defrost what i need. I recently went to a cafe in the Cotswolds where they baked all sorts of gluten free cakes........not only had they risen to perfection they tasted good too......i had two slices of lemon drizzle cake. :-) Jillymo

jetjetjet profile image
jetjetjet

If i took all that out of my diet -- I would be on water only :-( :-( :-(

Maaria profile image
Maaria

Not gluten free but have left out all white bread / pasta, etc because it simply makes me feel so bad - just like others have said: wiped out tired and bloated.

Not what you're looking for?

You may also like...

Does anyone with APS follow a Gluten free diet? Or Paleo diet?

I don't but am considering, the Paleo route, as it appears it could have a positive effect on...
Debs_Much profile image

Probably just a coincidence but ...

I started on a gluten free diet about a week ago. Gluten seemed like the only thing I could cut...
charlieab profile image

Arsenic in rice-is this a concern for those on Gluten-free diets

I saw a program on TV recently that talked about the danger people on GF diets might be exposed to...

I will be on this forum slightly less for one week

Hello, I will still be coming on here, to help, but am away on a retro busking tour in Adalucia in...
MaryF profile image
Administrator

Functional medicine

Maybe I should've titled this " going to the Dark side?" Just got back from a trip to Cleveland...
GinaD profile image

Moderation team

See all
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.