Hello everyone, this is all new to me but I need someone who understands. I feel so alone.
I am 28 and when I had my second baby in 2008 (I was 23) I suffered with multiple blood clots in my groin both sides. I was very poorly, nearly died. They said it was due to the pregnancy and I'd be ok after 6 months of warfarin. ..... I wasn't ok, I came off and in two weeks a clot built so bad that it was in my leg and up into my stomach. The pain was unbearable and I was hospitalised for a month. My new born baby was sent away so I could recover. I was discharged from hospital and still it took around 4 months to get walking again and for the swelling to go away.
I was diagnosed with Hughes syndrome and since then it's been hell. I have all these symptoms and am constantly in and out of hospital having tests and nobody seems to know what's going on. My legs are covered in spider and varrocus veins and also red blotches, I have one arm that is constantly numb and tingly, headaches and dizziness and the most recent thing is my memory. I keep completely forgetting everything it's so scary. Finally the last thing is they have told me I can't have anymore babies, this has totally broke my heart and I'm not coping with it very well. My INR level should be between 3-4 and I take 14 mg of warfarin daily.
With the physical appearance of my legs I feel so ugly and I don't even like to shower with my partner in the room as I think that he is thinking I'm gross. It makes me feel sick when I even look in the mirror.
Is there anyone who understands how I'm feeling? Please I just need to know I'm not alone.
(Sorry for long post)