Hi all, I am new to this site :)

[Cejo]

Hi,

I was diagnosed with seronegative cerebral APS just over a year ago and would love to chat with anyone of a similar age who also has the condition. I am twenty years old and currently studying at University.

I look forward to hearing from you!!

[TJSTICKYBLOOD]

Hi cejo welcome to the site. What country are you in? Im not your age however I'm always happy to chat.

[bernieembleton]

Hi, welcome to the site. I am also APS seronegative + Sjogrens/ Lupus. It effects me in many ways. Have you tried looking at the Hughes foundation web site. It has good information on. Bernadette/Bernie

[Squeezer]

Hi Cejo!!!

[MaryF Administrator]

Hi there, plenty of us on here are Seronegative, and in fact due to lack of support at times for this, three of us are putting a book together in the New Year - collating patient histories, this will be a welcome addition to the books already on sale. Mary F x

[Cejo]

Hi Guys!

I'm in Nottingham, England

Yes I have, it was a very useful website! Shed a lot of light on things that were confusing me

Mary that sounds like an excellent idea and really interesting too.

x

[MaryF Administrator in reply to Cejo]

Many patients end up at London Bridge with seronegativity issues, despite the very clear talks on the subject at our last patient's day at St Thomas Hospital, I lose count of the number of private messages I receive on here, where people are clearly annoyed and fed up and feel sidelined, despite their appalling symptoms. I am glad you have had some intelligent diagnosis. Mary F x

[Suzypawz]

Hi welcome to the forum x

I'm not your age but am here to chat whenever you would like what are you studying?

Hope you are ok, also I am near you, I'm in Burton on Trent!!! I am having a meeting on the 20th for fellow hughies if you would like to come? I have a post explaining where it is etc or you can message me & we can chat? X

[Cejo]

Hey, thank you

I'm studying Health and Social Care!

That sounds like a great idea, I actually have a ridiculously busy day on the 20th but if there's any chance that I could make it then I would like to come x