PBC

[MrsPearson]

I have been diagnosed with PBC. Primary Biliary Colongitis. There doesn’t seem to be a support group around the Lymington area nor surrounding areas.

If anyone else has this incurable liver disease I would love to get in contact with you. Just to have someone else to talk to would be brilliant

[Zest]

Hi MrsPearson

I don't know if you've had a look at the information pages in NHS Choices - but there is one about PBC, and a link is here:

nhs.uk/conditions/primary-b...

You could also look at these communities, here in Healthunlocked:

healthunlocked.com/search/p...

Zest

[MrsPearson in reply to Zest]

Thank you Zest. I am with the PBC foundation. I just wondered if there was actually a person with the same condition to physically talk to, a there is a lot of info out there but nobody to have a proper conversation with

[Zest in reply to MrsPearson]

Hi MrsPearson

Have a look at the Healthunlocked links that Hidden has given you below, as you can connect with other people with the same condition in those commuties, just as you are connecting here in Healthy eating community - you should hopefully find quite a few people who will be happy to talk - and I hope you do.

Also, I hope you'll stick around in Healthy eating community too, if you want to.

Zest

[Hidden]

Hi MrsPearson, you have my full sympathies as support is so useful so here's a link to the PBC foundation, another HU group:

healthunlocked.com/pbc-foun...

Plus:

healthunlocked.com/liver4life

And this is a new HU group:

healthunlocked.com/PBCers

So good luck with this and for all things healthy eating you're in good company on here.

Jerry 😊