Apologies in advance for the length of this post!
As per my title, I would greatly appreciate some informed advice regarding a test result. Read extensively on aspergillus and my other medical conditions, but what I have read seems to contradict with the advice I am receiving from my GP + respiratory specialist.
Diagnosed with Bilateral upper lobe emphysema (gold stage 2) and psoriatic arthropathy. Main medications are Qvar inhaler, Spiriva inhaler, and immunosuppressants (Methotrexate (low dose) and Enbrel) for psoriatic arthropathy, and painkillers / creams for psoriasis. Conditions have been stable for years.
Last few years have been getting more frequent cold / flu like symptoms, that have been lasting longer and longer. Prescribed antibiotics when needed, but am reluctant.
Prescribed antibiotics due to cold that wouldn't shift, very sore throat and periods of insomnia.
2 day hospitalisation (my 1st ever) due to waking up incredibly short of breath, feverish, lightheaded, trouble concentrating, generally feeling drunk / drugged up, incredibly sore throat, aches, headache. Put on antibiotics drip and prescribed another course after release.
Had very severe oral thrush (took a quite to be diagnosed), unable to eat any solids for 2 months (I hate chicken soup now, but lost 2 stone!), and took ages to clear up with Nystatin (no oral anti fungals due to complications with methotrexate).
Multiple tests discovered Vitamin D deficiency (12, now over 70 often intense course, most likely due to lack of sunlight), a positive aspergillus sputum microbiology (but below some threshold, apologies for not having the exact figure) and a negative one.
Blood test report from respiratory department - IGE 1142, Aspergillus specific RAST negative, Precipitin positive. Examination of a CT scan from mid 2014 showed no evidence of bronchiectasis, so APBA inconclusive. No follow-up scans or tests other than standard X-ray for emphysema.
Prescribed Mometasone Furoate for suspected Sinus problem, 2 months usage and no improvement.
July - Present day
Not much has changed, other than ability to eat nice food again, which is great for Xmas Generally feel permanently under the weather, mild fever symptoms, mild insomnia, mild headaches, difficulty concentrating a lot of the time, fatigue and apathy to my activities prior to may, occasional night sweats (enough to wake me up), pressure and sore eyes, hot / numb face, pain in ears and around area area, muscle aches (cramp in legs and severe neck ache mainly) and many other niggles too minor to mention . Started getting Tinnitus in my left ear in May, which has now become permanent and is ragingly loud (making insomnia worse). Psoriasis has gotten worse (probably stress) and spread to arms / legs and started getting eczema on my face (nose and cheeks, which I've never had before on my face despite having Psoriasis for 15 years).
Started squirting a saline solution up each nostril every day and sinus symptoms seem to be getting slightly better (tinnitus definitely has improved, which is fantastic as it was SO loud constantly), and nasal drip has started. Still, have a few hours feeling somewhat ok now and then, and then start feeling like crap again.
GP and Respiratory specialist pretty much say IGE 1142 is not something to be concerned about and has no symptoms, and are reluctant to repeat IgE or perform a IgG test. Got another pot for sputum test for after xmas. GP assumes many of my symptoms are stress related (which is a factor, especially from May to July, but am much more relaxed now with little improvement).
From my persistent symptoms I'm currently guessing I've some kind of Sinus problem (which saline solution helps, but only short term), and have an MRI IAM booked for next year (precautionary due to tinnitus is left ear only, though now left ear is quieter I'm noticing it in right, but much less loud).
Given that I have ALL the symptoms of an allergic reaction (including the racoon eyes!), I am pleading for some quality advice regarding my IGE score, and whether action / further investigation is warranted before it turns into a serious problem (especially with my other serious conditions) like APBA (or has already but undiagnosed). Been wondering whether aspergillus, fungal, allergic (has no tests) or antibody reaction is causing my sinus problems, or possibly AAS / AFS, or it's unrelated, or whether the information I've read / my interpretation is wrong and I should look for causes not related to IgE or aspergillus. Help please
Heartfelt thanks in advance for reading this essay, and can provide further information (I get sent all of my GP + hospital letters).
Merry Christmas everyone and a happy new year.