Treatment plan after Bladder tumours removal

[morsh]

Hello All

I am writing for my Dad as he is residing in another country.

He has had bladder tumours(2) removed by TURBT and histopath report suggesting: 'transitional cell carcinoma with areas of necrosis, infiltrating to lamina propria.' Operation notes making remarks regarding the proliferation to bladder wall and Endophytic growth

He is 72, type 2 diabetic and suggested to have 6 doses of BCG. This is as per the plan for the current consultant.

Another consultant he has seen is of the opinion of radical cystectomy! I am confused and not sure if we take this slow with BCG first before considering surgery.

Any suggestions/experiences would be great.

Kind regards,

M

[Jim47]

I live in the US and was 69 when I had a radical cystectomy. They created a urostomy and I have been living with appliances ever since. Unfortunately, my cancer metastasized and I needed chemotherapy and immunotherapy. It is almost 5 years since my surgery and I have been in remission for over 21 months now. Would I prefer not having to deal with a urostomy? Of course, but I have adjusted and live a relatively normal life and am thankful for every day.

[colingr in reply to Jim47]

Similar to Jim47, without metastasis, but with left nephrectomy added. 4 yrs on the bag is no bother now. I can make one last 4 days, and can see when it needs changed, as an opacity creeps outwards. Many early leakages avoided by frequent emptying and observation. (I don’t use the leg reservoir bag.)I use only hot water and a rough facecloth to clean the skin on replacement. I think the removal chemical leads to earlier failure, and it’s not necessary anyhow.

6 monthly check CT/ ureteroscopy.

colingr